respatory issues

respatory issues

Bkydtravel
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Joined: 22 Feb 2017, 16:06

18 Oct 2017, 16:14 #1

I know that there are a lot of DRs that do not like to have a illness undiagnosed and will just put a DX out there just to give the patient some comfort.  I was DX with "restrictive lung disease"  I asked the pulmonologist what caused this and she said it is a autoimmune disease with no known cause it just pops up on some people.  My question I'm  not even sure how to ask this but even though it is a diagnosed illness but not really a diagnosed illness cause they have not clue what caused it.  could this be still considered a/or part of the multi symptom "undiagnosed Illness"?  it is kinda weird as I was typing this I just got a call from the C&P DR trying to get me to come in sooner so they can do another PFT  to go along with the 5 that I have already had done.  My private lung doc has already done the ct scans and Xrays  and has said that I do not have asthma or COPD.  I am just looking for answers at to if anyone else has had these problems was in DS/DS and returned in 93 for restore hope.  I know that I am all over the place with this but I like I said I am just looking for answers.  I am tired of being sick and the DR's not really giving me any answers.

 Thanks for any help or answers or direction as to what way to go.

Bkydtravel
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Bkydtravel
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Joined: 22 Feb 2017, 16:06

30 Oct 2017, 21:17 #2

**update**
Got my ratings back and they gave me 30% for my restrictive lung disease saying it was from Asbestos exposure and Gulf War Environmental Hazards...so just hoping it does not get any worse. 3 conditions rated 4 deferred now waiting on the C&P for the other 4 items.

Bkydtravel
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Robbie462
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Joined: 31 Oct 2017, 02:37

31 Oct 2017, 02:52 #3

For years after coming back from the sand box I had chronic bronchitis, and other lung issues. Just before I retired I was lucky enough to get a retired Major who was a Pulmonologist... he ended up doing a lung biopsy and found that I had gotten Sarqoidoses of the lung... which they contributed to the "SAND BOX" I have had more PFT's, MRI's CT's, chest xrays than I know what do do with. I'm finally @90% and waiting word back for "unemployability"
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Bkydtravel
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Joined: 22 Feb 2017, 16:06

01 Nov 2017, 14:29 #4

Robbie462 wrote: For years after coming back from the sand box I had chronic bronchitis, and other lung issues. Just before I retired I was lucky enough to get a retired Major who was a Pulmonologist... he ended up doing a lung biopsy and found that I had gotten Sarqoidoses of the lung... which they contributed to the "SAND BOX" I have had more PFT's, MRI's CT's, chest xrays than I know what do do with. I'm finally @90% and waiting word back for "unemployability"
My Pulmonologist is wanting to do some biopsys saying there is some unusual clusters of Lymphnodes that she is wanting to check out .  Now she just scheduled me for another sleep study I know that I have sleep apnea and have a Cpap  but have been having a hard time keeping the mask on gasping for breath.  so she just ordered me a bi-pap so not sure where she is going with this.  I am not sure if I should claim the Sleep Apnea secondary to my SC lung issue.  might have to throw this question out there for the Pros to answer.
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Cavmedic
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Joined: 13 Aug 2009, 06:19

01 Nov 2017, 15:14 #5

What does your doctor say? Ask him/her what they think the reason for your sleep apnea is.
Don't try and just claim it secondary to everything without good rationale and evidence.
How is your weight?
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Bkydtravel
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Joined: 22 Feb 2017, 16:06

01 Nov 2017, 15:36 #6

Cavmedic wrote: What does your doctor say? Ask him/her what they think the reason for your sleep apnea is.
Don't try and just claim it secondary to everything without good rationale and evidence.
How is your weight?
I knew that this was coming!  My weight was good 5'10" at 190 but I have been having some Cardiac issues and have been retaining a lot of water along with stomach issues IBS and diabetic gastroparesis. and have gained 25lbs in the last year but my neck has stayed small around 14-15 inch so no major issues in the neck area.  I have not really gotten a good solid answer from her about what and why she is wanting another sleep study and if it is central or what all that I do know is that my lung issue is restrictive lung,  I do not have COPD, Asthma, and inhalers will not work for me.  I have my sleep study at her lab in a week so maybe she will get some answers to her questions and give me a straight answers.  And that is why I have not claimed OSA  I want some direct answers before I go claiming anything.

Bkydtravel
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pgwvet
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Joined: 08 Jun 2008, 00:42

13 Nov 2017, 22:23 #7

No matter what your doctor say, how you claim your SA is still going to be as a secondary. You can read up a bit in the guide on this page http://www.kansasvets.org/chap01.htm#sd

I did an example with it, a one should look at all causes and not just one.  If you look at the Guide section and NOD and the example you will see what I mean.
http://www.kansasvets.org/Claims%20101.html#c53a
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
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Robbie462
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Joined: 31 Oct 2017, 02:37

Yesterday, 01:16 #8

pgwvet wrote:No matter what your doctor say, how you claim your SA is still going to be as a secondary. You can read up a bit in the guide on this page http://www.kansasvets.org/chap01.htm#sd

I did an example with it, a one should look at all causes and not just one.  If you look at the Guide section and NOD and the example you will see what I mean.
http://www.kansasvets.org/Claims%20101.html#c53a
No matter what you do, document document document. Get copies of all your records you will need them for both SA and VA (if you see a private doc)

Sent from my SM-G900V using Tapatalk

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Bkydtravel
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Joined: 22 Feb 2017, 16:06

Yesterday, 15:06 #9

***Update***
I had my 2nd sleep study they started me out on the CPAP at my old settings and the tech stated that I didn't last but maybe an hour on that they had to switch me over to the BiPAP at a higher settings.  and I did much better with it.  She did say I had Severe SA but did not say if it was upper or mid.  I am going to get the test results to find out what they say.  Hopefully my Pulmonologist will be able to tell me more if it is associated with my SC lung issue  in December when I have my appointment with her.
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