Comp. for Disabilities associated with Gulf War Service

pgwvet
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h3
Joined: 08 Jun 2008, 00:42

11 Aug 2010, 21:15 #41

branman wrote:I have finally realized that I need to file a claim after 19 yrs.  I was in field artillery unit as a light wheel vehicle mechanic 63B and have so many symptoms that I can't ignore it any longer.  I have white patches all over my body including my face and head that I did not have before I went in the service.  My muscles hurt progressively worse now, extremely exhausted after activities and it just wipes me out for a day or two, I can't sleep good and often have nightmares and often depressed because of my conditions.  My brother in law is receiving benefits because he was in my same unit and have some of the same symptoms.  I want to know if I am to use a VA doctor of which I do have an appt. for my skin on the 5th of Aug. or should I also use a private doctor or get a IBE?  I have already consulted with a private lawyer for benefits and don't mind paying for their services because this is a huge undertaking that I have no knowledge on.  Any of your guys who have gone through it and have been successful with getting your benefits comments and suggestions would be highly appreciated.  Wish me luck because I know that this is a long battle to fight.
The best thing is to read over the NGWRC health care guide to toxic wars. http://www.ngwrc.org/inde...&id=32&Itemid=22
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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NavyArmy
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Joined: 19 Aug 2010, 21:43

22 Aug 2010, 13:22 #42

  Ok. Is GWI a seperate diagnosis????  I just read some of the illnesses listed under it and was a little shocked. But it MIGHT explain some of the problems I'm having.
I served inthe Navy from 1996-2001 and was in the Gulf AOR from 1997-1998. I served in the US Army after 2001 and was diagnosed on Army AD with alot of the illnesses listed under GWI. These include Chronic Costochondritis(tietze syndrome), Joint pain, back pain, Neuro-psych sympstoms (anxiety,depression,adjustment disorder,insomnia), and psoriasis. Oh, add an abnormal EKG/heart rythym to that list.Please see my other post regarding my initial VA claim. SHould I be claiming GWI or something??  
Last edited by NavyArmy on 22 Aug 2010, 13:25, edited 1 time in total.
Army Retired (Chapter 61)Navy Veteran
SSDI
70%PTSD
50% OSA             
40% Thoracic Spine
20%RT Ankle
[color=RGBA(255, 255, 255, 0)]10% LT Ankle[/color]
10% RT Hand
[color=RGBA(255, 255, 255, 0)]10% RT Knee[/color]
10% RT Shoulder  
10% Hypothyroid

10% LT Shoulder
[color=RGBA(255, 255, 255, 0)]10% Cervical Spine[/color]
0% nerve and muscle pain (Gulf War)
0% Hypertension
------------------------
100% P&T
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pgwvet
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h3
Joined: 08 Jun 2008, 00:42

22 Aug 2010, 23:38 #43

NavyArmy wrote:  Ok. Is GWI a seperate diagnosis????  I just read some of the illnesses listed under it and was a little shocked. But it MIGHT explain some of the problems I'm having.
I served inthe Navy from 1996-2001 and was in the Gulf AOR from 1997-1998. I served in the US Army after 2001 and was diagnosed on Army AD with alot of the illnesses listed under GWI. These include Chronic Costochondritis(tietze syndrome), Joint pain, back pain, Neuro-psych sympstoms (anxiety,depression,adjustment disorder,insomnia), and psoriasis. Oh, add an abnormal EKG/heart rythym to that list.Please see my other post regarding my initial VA claim. SHould I be claiming GWI or something??  
You can file for all of them as due to GWI.
You only need to have served in the gulf TOA. Any one that was in the gulf from 1990 to today can file.
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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Keithn101
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Joined: 03 Sep 2010, 20:23

03 Sep 2010, 20:31 #44

It applies to all that served in that theater, it does not apply to those that served in Afgahnistan
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mugu07taco
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Joined: 23 Feb 2010, 19:07

06 Oct 2010, 19:59 #45

Hello,

I did not have the joint pain while in the Persian Gulf. I started having the joint pain after my last deployment to the Persian Gulf. I received my denial August 4th 2010. They stated that I do not have a dx which I do not.

It states “Qualifying Chronic Disability Less than 10 Percent. In order to qualify for service connection, the qualifying chronic disability must have become manifest either during active duty in the Southwest Area Theater during the Gulf War or to a degree of 10 percent or more after the date on which the veteran last performed active service in the Southwest Asia theater of operations during the Gulf War.”

What are the criteria for the 10%? Can someone cite the source? I have 10 more months to file NOD.

I have a VSO but with the help from this site have been able to file my own claims. Like others have said, it’s my claim and no one else cares more then me. VSO is a vet and I feel down plays my disabilities stating her’s are worse.

Does the VSO get papers I do not get about my claim? What is the process of releasing my VSO of duties? I have trust issues. Meeting with VFW to look into joining. I hear they have really good VSOs. I have MH issues that do not help matters.

Doctors say this might be the start of arthritis. The pain is in both feet/ankles and hands/wrists.

I am not overly concerned about the 10% compensation, I would just like to have sc to cover future medical expenses. I appreciate the VA medical care and with this economy and the cost of health care rising this worries me.

Thank you to everyone for the help. This site has helped very much and I thank each and everyone for making this site what it is. I hit an all time low a fee months ago and just now getting back on my feet.

Sorry for the rant but I am truly grateful for this site.

Thanks,
Dave
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pgwvet
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h3
Joined: 08 Jun 2008, 00:42

07 Oct 2010, 20:08 #46

mugu07taco wrote:Hello,

I did not have the joint pain while in the Persian Gulf. I started having the joint pain after my last deployment to the Persian Gulf. I received my denial August 4th 2010. They stated that I do not have a dx which I do not.

It states “Qualifying Chronic Disability Less than 10 Percent. In order to qualify for service connection, the qualifying chronic disability must have become manifest either during active duty in the Southwest Area Theater during the Gulf War or to a degree of 10 percent or more after the date on which the veteran last performed active service in the Southwest Asia theater of operations during the Gulf War.”

What are the criteria for the 10%? Can someone cite the source? I have 10 more months to file NOD.

I have a VSO but with the help from this site have been able to file my own claims. Like others have said, it’s my claim and no one else cares more then me. VSO is a vet and I feel down plays my disabilities stating her’s are worse.

Does the VSO get papers I do not get about my claim? What is the process of releasing my VSO of duties? I have trust issues. Meeting with VFW to look into joining. I hear they have really good VSOs. I have MH issues that do not help matters.

Doctors say this might be the start of arthritis. The pain is in both feet/ankles and hands/wrists.

I am not overly concerned about the 10% compensation, I would just like to have sc to cover future medical expenses. I appreciate the VA medical care and with this economy and the cost of health care rising this worries me.

Thank you to everyone for the help. This site has helped very much and I thank each and everyone for making this site what it is. I hit an all time low a fee months ago and just now getting back on my feet.

Sorry for the rant but I am truly grateful for this site.

Thanks,
Dave
File your NOD right away. If you are being treated for the joint pain with pain meds of any kind, even aspirin, you meet the 10 rule under the DC code of [font=&AMP]Fibromyalgia that they use some of the time. Also have your wife and friends write statements for you on just how bad you are most of the time.  They have to use them in deciding your case. This was ruled on is a court case back in 2005.

After getting the NOD in down load the NGWRC health care guide and high light the things that is wrong with you in it.  do not use the
[/font][font=&AMP]Fibromyalgia, but do use CFS.  [/font][font=&AMP]Fibromyalgia max rating is 40% and CFS is 100%.

In our document folder you will need the training letter on gulf war illness.  Make sure your medical doctors all see it.
http://www.ngwrc.org/docs/VAtl10-01.pdf
[/font]
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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branman
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Joined: 26 Jul 2010, 07:05

13 Oct 2010, 05:41 #47

Hey Jim

How are you? I have a claim in for SC Disability for PTSD and my skin condition which is pretty severe, Vitiligo (it covers about 20%  of my entire body).  I also have a lot of the other symptoms listed by law which are headaches, joint pain,and  muscle pain.How do I tie those into my claim that I have in now?  Do I have to wait until the first 2 are approved or denied or do I I add those other multi symptoms to my claim?  It seems like we are playing with language here instead of the veterans real problems.  If you would, please help.  By the way, I have a copy of all of my medical records that I have from the VA, since they are my doctors and to be quite honest with you the doctors do an excellent job at taking care of me.  I hope that they look at the records and don't try any tricky business with saying that I my conditions are diagnosed illness and don't fall under the undiagnosed illnesses and I don't qualify.  I need clarity on the steps to take.

Peace
Bryant
SSDI awarded,
70% PTSD  , 40% Fibromyalgia, 30%IBS= Total Awarded 90% Granted 100% P&T
 
One Does Not Have To Be Evil To Do Evil Because Good Men Only Have To Say Nothing Or Do Nothing...

 Image    Image  Image 
Image  Image      Image    Image

Peace and always much unadulterated Love
Thanks For Your Service
Branman
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pgwvet
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h3
Joined: 08 Jun 2008, 00:42

19 Oct 2010, 15:28 #48

branman wrote:Hey Jim

How are you? I have a claim in for SC Disability for PTSD and my skin condition which is pretty severe, Vitiligo (it covers about 20%  of my entire body).  I also have a lot of the other symptoms listed by law which are headaches, joint pain,and  muscle pain.How do I tie those into my claim that I have in now?  Do I have to wait until the first 2 are approved or denied or do I I add those other multi symptoms to my claim?  It seems like we are playing with language here instead of the veterans real problems.  If you would, please help.  By the way, I have a copy of all of my medical records that I have from the VA, since they are my doctors and to be quite honest with you the doctors do an excellent job at taking care of me.  I hope that they look at the records and don't try any tricky business with saying that I my conditions are diagnosed illness and don't fall under the undiagnosed illnesses and I don't qualify.  I need clarity on the steps to take.

Peace
Bryant
list each of the item on a VA form 21-4138 and claim them as due to undiagnosed illness.  Write when each started and how bad they get.  after turning in the from, get statements from those that know you to support your claim.
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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pgwvet
h3
h3
Joined: 08 Jun 2008, 00:42

29 Nov 2010, 17:57 #49

mugu07taco wrote:Hello,

I did not have the joint pain while in the Persian Gulf. I started having the joint pain after my last deployment to the Persian Gulf. I received my denial August 4th 2010. They stated that I do not have a dx which I do not.

It states “Qualifying Chronic Disability Less than 10 Percent. In order to qualify for service connection, the qualifying chronic disability must have become manifest either during active duty in the Southwest Area Theater during the Gulf War or to a degree of 10 percent or more after the date on which the veteran last performed active service in the Southwest Asia theater of operations during the Gulf War.”

What are the criteria for the 10%? Can someone cite the source? I have 10 more months to file NOD.

I have a VSO but with the help from this site have been able to file my own claims. Like others have said, it’s my claim and no one else cares more then me. VSO is a vet and I feel down plays my disabilities stating her’s are worse.

Does the VSO get papers I do not get about my claim? What is the process of releasing my VSO of duties? I have trust issues. Meeting with VFW to look into joining. I hear they have really good VSOs. I have MH issues that do not help matters.

Doctors say this might be the start of arthritis. The pain is in both feet/ankles and hands/wrists.

I am not overly concerned about the 10% compensation, I would just like to have sc to cover future medical expenses. I appreciate the VA medical care and with this economy and the cost of health care rising this worries me.

Thank you to everyone for the help. This site has helped very much and I thank each and everyone for making this site what it is. I hit an all time low a fee months ago and just now getting back on my feet.

Sorry for the rant but I am truly grateful for this site.

Thanks,
Dave
Dave each one of the areas for the undiagnosed illness is being paired up with an illness that can be diagnosed.  They then use the 10% from that rating system.  An example is headaches, the M21-1 has the rater using the same standards as for migraine.  The same for skin rashes, and any thing else.
There are cases where veterans have been told there skin rashs was from 2 to 5 different thing and the courts have said that if it is not from one thing then the ro has to rate it under section 1117. 
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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spedmed
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Joined: 13 Jun 2011, 03:24

13 Jun 2011, 03:24 #50

Can anyone please help me.  My dad has Gulf War Syndrome and seems to be getting worse.  He is in alot of pain and is always tired even when he has had sleep.  Doctors don't appear to be very receptive to GWS and the last hospital that my mom contacted told her it was all in his head.  Isn't there anything out there to help with the pain and the tiredness.  What type of doctor should he see???

Signed,
Very worried daughter
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tsgt af
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Joined: 13 Nov 2008, 21:30

13 Jun 2011, 04:48 #51

however i would take him to the  veterans  hospital or the nearest clinic and get him some help.
google veterans admin   hospital  or clinic  for your state  , then call an make an appt  for your dad .
if you want  give me your home state and i will look up the number for your dad .
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spedmed
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Joined: 13 Jun 2011, 03:24

13 Jun 2011, 14:50 #52

South Dakota

He has been to the VA....not much help. I will tell my mom to get him into a rhematologist. I am amazed how little our state does with GWS. I can't find any support groups or doctors that deal with this problem. Thanks so much for your help:)
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spcrod
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Joined: 02 Jul 2011, 16:27

02 Jul 2011, 16:27 #53

I was in the Gulf War 13B artillary was attached to 2-2acr. I had never seen or sought any SCD but have lived with many issues over the last 20 years. ringing in the ears, constant fatigue, muscle pain in the leggs, back and arms. I believe I also have many symptons of PTSD and am being treated for anxiety by my current private physcian.

My question is I just started seeing the VA and was approved for VA medicare priority group 6. What's my next step or the best route for me to go and try and get my conditions service connected? Should I try and get help localy from someone who has been through this or is there groups around that will help me traverse the paper work involved. I've already started and quite frankly they make it confusing and painfull on next steps.

Thanks for anyones help with direction on this.

R Street
6/41 FA
Pinellas County Florida
Last edited by spcrod on 02 Jul 2011, 17:08, edited 1 time in total.
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Keithn101
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Joined: 03 Sep 2010, 20:23

09 Jul 2011, 16:46 #54

Make an appointment with mental health 1st and get evaluated for PTSD. Get enrolled in the Gulf War registry, take the exam, it is free. All other medical issues need a 6 month or more time period to qualify as chronic. Best to take all your private physician medical records and include them with your VA medical records. The begin to use the VA medical resources. Documentation is the key point and no better documentation than the VA's for medical issues when you are filing a claim.
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BillyHerring
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Joined: 15 Jul 2011, 19:47

15 Jul 2011, 19:46 #55

I am a GWV, with the GWS. I am 100% service connected. To all the vets out their, you can get your symptoms service connected. degenerative disc disease, PTSD, headaches, rashes, shortness of breath respiratory system (upper and lower), loss of memory, Abnormal weight loss or gain, Cardiovascular signs or symptoms, Fatigue, Gastrointestinal signs or symptoms, Headache, Joint pain, Muscle pain, Neurological signs or symptoms, Signs and symptoms involving the skin, and nightmares and Sleep disturbances. I did hire a DAV to represent me, but it was waste of my time. My wife and I were in the DAV office, we met this man. He gave my wife a website things!!!! have to be written just as they want it to be written in order for your Connection to be granted. My wife took my records to a MD. had him to read over them, he wrote a report!!!!... "NOTICE" ...STATING that in HIS Medical Opinion the time he has been a dr. such as 25 yrs, that he has treated me for a period of time and read all my medical records from the Gulf War, and since he has came home. List of your medical history.  And finish the letter this way "NOTICE" In His medical Opinion these symptoms and diseases are related to the Gulf war.
Last edited by BillyHerring on 15 Jul 2011, 19:49, edited 1 time in total.
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RodneyStreet
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Joined: 08 Aug 2011, 11:34

08 Aug 2011, 11:34 #56

Thanks for your help with this. I’ve filed for 11 disabilities and I’m now seeing VA docs for them.  I’m going to a local outpatient clinic with a primary care physician there that seems to be the first person to listen to me. I’m now seeing a psychologist who diagnosed me with PTSD and a psychiatrist who put me on meds for the PTSD and chronic pain.  They have also already done a hearing test and diagnosed me with tinnitus and therapy for it.  My claims status is still in stage 1 but things seem to be going better with the help from this site.





 

Thanks all



Rodney



 
Last edited by RodneyStreet on 08 Aug 2011, 14:22, edited 1 time in total.
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gulf war vet 1991
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Joined: 12 Oct 2011, 15:42

12 Oct 2011, 15:42 #57

I filed a claim for gulf war illness back in 06-20-2010 and it went to the rating board on 08-25-2011.I called today 10-12-2011 and they told me it went to the rating on 10-06-2011 that they had to get something that was missing from my file.my question is does it mean that they are ready to rate my claim or is it going to take even longer.my claim has about 7 different issues to rate and the last one is i.u. 
Last edited by gulf war vet 1991 on 12 Oct 2011, 16:50, edited 1 time in total.
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pgwvet
h3
h3
Joined: 08 Jun 2008, 00:42

14 Oct 2011, 16:04 #58

gulf war vet 1991 wrote:I filed a claim for gulf war illness back in 06-20-2010 and it went to the rating board on 08-25-2011.I called today 10-12-2011 and they told me it went to the rating on 10-06-2011 that they had to get something that was missing from my file.my question is does it mean that they are ready to rate my claim or is it going to take even longer.my claim has about 7 different issues to rate and the last one is i.u. 
they are working and it can be a while, now that they are missing something.
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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Groovy Lo
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Joined: 23 May 2011, 20:50

19 Oct 2011, 06:21 #59

Say Jim, would a TINS UNIT be considered the same as regular meds, ifgiven too vet for treatment by va doc,... Thanks !!!
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pgwvet
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h3
Joined: 08 Jun 2008, 00:42

19 Oct 2011, 19:01 #60

Keithn101 wrote:It applies to all that served in that theater, it does not apply to those that served in Afghanistan
the 9 added illness apply to those that served in Afghanistan, please reasd the updated CFR.
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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pgwvet
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h3
Joined: 08 Jun 2008, 00:42

19 Oct 2011, 19:05 #61

Groovy Lo wrote:Say Jim, would a TINS UNIT be considered the same as regular meds, ifgiven too vet for treatment by va doc,... Thanks !!!
if the unit was to teat the symptom of the illness that the regulation states needs treatment, yes. it is an alternative to pain meds. and in most cases bettter.
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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veinchaser
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Joined: 28 Mar 2009, 01:02

21 Oct 2011, 18:55 #62

I am also a GWV and have been in the GW registry since 1996; had a GW exam then in some out sourced clinic that they sent us all to.  However, I have yet been able to locate these records, as they seem to have dissapeared off the face of the earth.  I had another GW exam in 2004.  That is when I was dx with PTSD and MDD by a VA Psychiatrist.  I was put on so many medications and also had about 2 years of therapy and couseling. I immediately filed a claim and was denied; filed NOD and denied again. Filed an apeal; had a Video conference Hearing and was denied increase for myofacial Lumbar Spine pain and DDD, but PTSD was deferred back to BVA; remanded back to ATL RO and was denied again.  In Dec 2010, after new PTSD rule, I was sent another letter asking me to write another of many Stressor Letters.  I am told now after sending in Stressor Ltter and lay statements, that my claim is at this point waiting for rating.  By the way, I was awarded SSDI in 2007. 

I want to now file for GW Illness, but I don't think I should at his point, because my file may be set back if I file a new claim now.  Is this true or am I wrong?  I have had some bad experiences with VSO,s and DAV reps.  I just refuse to deal with the reps at the VA.  They do not seem concerned about guiding vets in the right directions. At least this has been my experience since I left the military in 1998.  I have been fighting my PTSD claim for going on 8 years now.  If SS looked at my VA records and awarded me, why can't the VA.  My time is almost up to file for GW Illness.  What shall I do?  Somebody help!!! 
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pgwvet
h3
h3
Joined: 08 Jun 2008, 00:42

24 Oct 2011, 15:18 #63

veinchaser wrote:I am also a GWV and have been in the GW registry since 1996; had a GW exam then in some out sourced clinic that they sent us all to.  However, I have yet been able to locate these records, as they seem to have dissapeared off the face of the earth.  I had another GW exam in 2004.  That is when I was dx with PTSD and MDD by a VA Psychiatrist.  I was put on so many medications and also had about 2 years of therapy and couseling. I immediately filed a claim and was denied; filed NOD and denied again. Filed an apeal; had a Video conference Hearing and was denied increase for myofacial Lumbar Spine pain and DDD, but PTSD was deferred back to BVA; remanded back to ATL RO and was denied again.  In Dec 2010, after new PTSD rule, I was sent another letter asking me to write another of many Stressor Letters.  I am told now after sending in Stressor Ltter and lay statements, that my claim is at this point waiting for rating.  By the way, I was awarded SSDI in 2007. 

I want to now file for GW Illness, but I don't think I should at his point, because my file may be set back if I file a new claim now.  Is this true or am I wrong?  I have had some bad experiences with VSO,s and DAV reps.  I just refuse to deal with the reps at the VA.  They do not seem concerned about guiding vets in the right directions. At least this has been my experience since I left the military in 1998.  I have been fighting my PTSD claim for going on 8 years now.  If SS looked at my VA records and awarded me, why can't the VA.  My time is almost up to file for GW Illness.  What shall I do?  Somebody help!!! 
list out your gulf war illness and talk to your doctor. take a copy of the Dx of CFS from the Mayo Clinic and go over it with him. Get it in the records first then file.
http://www.mayoclinic.com...S00395/DSECTION=symptoms

When you get the PTSD rated, ask for the earlier date.
Last edited by pgwvet on 24 Oct 2011, 15:21, edited 1 time in total.
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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LBoogie0617
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Joined: 29 Oct 2011, 21:30

29 Oct 2011, 21:51 #64

I have every sypmton of GWI and more. They have run a bunch of tests and still don't know what's wrong with me. They denied my claim because I failed to have a diagnosis of an undiagnosable illness. WTF?. Have someone wrorking my case now but he's trying to go for PTSD to at least get my rating bumped up from 10%. I'm far more concerned with all the other major medical problems I have going on. How do you get the right "undiagnosis"? Going in a week to 6 month check up. Instead of saying they don't know what's wrong with me they just make up something that has a code and lists it as that. Like for the joint pain it's listed as " Bi- lateral multi-arthralgia". Do I ask to change the codes to ones listed up there under whatever category it falls under instead of this random diagnosis? That's just one example of my "diagnosis" The doc doesn't know what's wrong with me but just puts in whatever is closest to my symptoms to have something as a diagnosis. Why doesn't the VA acknowledge if not undiagnosable illness then the codes I have been radomly given and at least approve it for something..I've prob got 10 or more random one size fits all dx codes to give everything that's wrong with me but they don't why any of it is happening or exactly "what" it is that's causing them to happen in the first place. My family history and prior service medical history is clean of any of the stuff going on.
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pgwvet
h3
h3
Joined: 08 Jun 2008, 00:42

01 Nov 2011, 15:28 #65

LBoogie0617 wrote:I have every sypmton of GWI and more. They have run a bunch of tests and still don't know what's wrong with me. They denied my claim because I failed to have a diagnosis of an undiagnosable illness. WTF?. Have someone wrorking my case now but he's trying to go for PTSD to at least get my rating bumped up from 10%. I'm far more concerned with all the other major medical problems I have going on. How do you get the right "undiagnosis"? Going in a week to 6 month check up. Instead of saying they don't know what's wrong with me they just make up something that has a code and lists it as that. Like for the joint pain it's listed as " Bi- lateral multi-arthralgia". Do I ask to change the codes to ones listed up there under whatever category it falls under instead of this random diagnosis? That's just one example of my "diagnosis" The doc doesn't know what's wrong with me but just puts in whatever is closest to my symptoms to have something as a diagnosis. Why doesn't the VA acknowledge if not undiagnosable illness then the codes I have been radomly given and at least approve it for something..I've prob got 10 or more random one size fits all dx codes to give everything that's wrong with me but they don't why any of it is happening or exactly "what" it is that's causing them to happen in the first place. My family history and prior service medical history is clean of any of the stuff going on.
Bi- lateral multi-arthralgia" it is doctor talk for joint pains on your left and right side of the body in many paired joints.

"They denied my claim because I failed to have a diagnosis of an undiagnosable illness. " I have seen this one many time in the past. I would like to know who is your VSO helping you with your claim. The NOD is a no brainier. I see these types of denials from the worst states like AZ, AK, and FL.
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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pacos911
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Joined: 15 Sep 2011, 01:03

11 Jan 2012, 23:15 #66

I served on Active duty from 1998-2006. I have many concerns about my health and I am not getting the truth somewhere. I am 100% service connected and have been for 4 years. Recently I went to a Rheumatoligy appointment and was told by the Dr there that I dont have RA. I said ok then what is it i do have I have my entire military health record. I have positive Rheumatoid blood work. I experience joint pain on a daily basis in all of my joints and I always feel tired even if I have not done anything sometimes. I just signed up for the Gulf War Registry exam.  I have recieved all the Anthrax shots as well as Small Pox as well as taking the PB pills. I was in OIF Feb 15, 2003 - June 28, 2003. I was all over the place in Iraq.  I have been complaing of joint pain every since 2006 to the VA. I just recently found out about the registry. If anyone can give me some insight as to what to expect would be greatly appreciated.
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jameschap
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Joined: 23 Mar 2009, 00:52

14 Jan 2012, 00:36 #67

pacos911 wrote:I served on Active duty from 1998-2006. I have many concerns about my health and I am not getting the truth somewhere. I am 100% service connected and have been for 4 years. Recently I went to a Rheumatoligy appointment and was told by the Dr there that I dont have RA. I said ok then what is it i do have I have my entire military health record. I have positive Rheumatoid blood work. I experience joint pain on a daily basis in all of my joints and I always feel tired even if I have not done anything sometimes. I just signed up for the Gulf War Registry exam.  I have recieved all the Anthrax shots as well as Small Pox as well as taking the PB pills. I was in OIF Feb 15, 2003 - June 28, 2003. I was all over the place in Iraq.  I have been complaing of joint pain every since 2006 to the VA. I just recently found out about the registry. If anyone can give me some insight as to what to expect would be greatly appreciated.
It is a comprehensive exam similar to physical. It is important that you tell the examiner everything going on with you. No matter how insignificant you may think it is. Often the examiners are far from squared away. If you can request a WRIISC referral during the registry. Good luck Image 
“Setting a good example is a far better way to spread ideals than through force of arms.”           VETERAN

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pacos911
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Joined: 15 Sep 2011, 01:03

14 Jan 2012, 13:39 #68

What is a WRIISC assesment?
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mashtun
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Joined: 08 Oct 2011, 17:14

15 Jan 2012, 15:44 #69

Got my GW registry updated and am scheduled for my C&P in the same office in about a week and a half. From listening to the registry Dr. (which apparently could turn out to be my C&P Dr. as well) talk about whats going on with this process and what vets are reporting here, I have mixed thoughts but am preparing for the worst. On one hand VA site makes it sound more as if it will be more cut and dry for the veteran. My migrains seem to something that could be like that but, as I am hearing from other vet, the Dr's are trying to put everything in a category and not leave things "undiagnosed". Curently I have IBS as a claim, as i have the correct symptoms but my primary care didnt want to put that as the diagnosis (not sure what she put). The registry Dr. said to get IBS reworded to "Functional gastrointestinal disorders" on my claim. I've got SA and insomnia, so i'm claiming sleep disturbances. I was also told by the Dr that wording is everything so i guess I'll put "I am filing a claim for my _______ as a presumptive condition due to my service in the Gulf War under section 3.317." on my different statements and hope for the best.
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mashtun
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Joined: 08 Oct 2011, 17:14

15 Jan 2012, 15:48 #70

I meant to add filling for the different claims with the details of the symptoms, how they're effecting me as well.
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bjpayne
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Joined: 18 Mar 2012, 22:27

18 Mar 2012, 22:27 #71

Hello I am  a new member
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bjpayne
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Joined: 18 Mar 2012, 22:27

18 Mar 2012, 22:51 #72

I came off Active Duty in 2007 and I processed my first claim myself and received a rating og 60%. A year later my conditions were worsening and when I began to see my monthly therapist she diagnosed me with PTSD and depression and suugested that I put in a claim for that and let the VSO do it. Well our VSO is only at the VA once a week on Fridays from the hours of 08:00 AM to 12 noon that day. So, if you get there at 11:30 and 5 or 6 people are in front of you he will tell you to come back the following week? He is a veteran too and gets 100%. My problem is, I tried to allow the system to do the job for me the second time and my therapist assured me that this previous veteran was aware of PTSD being compensated to Gulf War Veterans and I have been in inpatient treatment for over 4 months and when I called him to check the status of my claim he told me that if the Decsion Review Officer has it then they are awaiting a decision. I called the VA every week and I stopped prior to me calling him because they were telling me the same thing. It has been since January 2009. I asked him how long does it take for the DRO to make a decision when he has all the medical documentation in front of him and that I thought maybe Reading was not a Requirement for the DRO when he got his job because we are over three years now. My sinus situation has also gotten worser to where I get up every morning and my eyes are automatically irrigating with running water time my feet hit the floor then my nose starts and its all day some days. I get allergy shots and sleep with a CPAP machine and they said that my sleep apnea was "service connected" but narlopesy was not and this is why I came off Active duty they knew my condition and they were sending places so far out and I could not stay awake and would have to pull to the side of the road so I wouldn't kill myself but while I was in Desert Storm it was a good thing someone was riding with me. Before I came off active duty I had my own office and it was beside the main door that you had to have a combination to get into and I would fall asleep at my desk every day and when I heard someone punching numbers in that door I would wake up like I had been awake all the time. I knew that it was time for me to go. My rpoblem is why do these people think that they have the power to talk to us any kind of way. I reported a supervisor at the VA that told me that I had so many claims in that I did not know which one was which and I told her that this is what she got paid to do. I am still at it with them
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jpapa
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Joined: 26 Sep 2011, 15:55

18 Mar 2012, 22:55 #73

bjpayne wrote:I came off Active Duty in 2007 and I processed my first claim myself and received a rating og 60%. A year later my conditions were worsening and when I began to see my monthly therapist she diagnosed me with PTSD and depression and suugested that I put in a claim for that and let the VSO do it. Well our VSO is only at the VA once a week on Fridays from the hours of 08:00 AM to 12 noon that day. So, if you get there at 11:30 and 5 or 6 people are in front of you he will tell you to come back the following week? He is a veteran too and gets 100%. My problem is, I tried to allow the system to do the job for me the second time and my therapist assured me that this previous veteran was aware of PTSD being compensated to Gulf War Veterans and I have been in inpatient treatment for over 4 months and when I called him to check the status of my claim he told me that if the Decsion Review Officer has it then they are awaiting a decision. I called the VA every week and I stopped prior to me calling him because they were telling me the same thing. It has been since January 2009. I asked him how long does it take for the DRO to make a decision when he has all the medical documentation in front of him and that I thought maybe Reading was not a Requirement for the DRO when he got his job because we are over three years now. My sinus situation has also gotten worser to where I get up every morning and my eyes are automatically irrigating with running water time my feet hit the floor then my nose starts and its all day some days. I get allergy shots and sleep with a CPAP machine and they said that my sleep apnea was "service connected" but narlopesy was not and this is why I came off Active duty they knew my condition and they were sending places so far out and I could not stay awake and would have to pull to the side of the road so I wouldn't kill myself but while I was in Desert Storm it was a good thing someone was riding with me. Before I came off active duty I had my own office and it was beside the main door that you had to have a combination to get into and I would fall asleep at my desk every day and when I heard someone punching numbers in that door I would wake up like I had been awake all the time. I knew that it was time for me to go. My rpoblem is why do these people think that they have the power to talk to us any kind of way. I reported a supervisor at the VA that told me that I had so many claims in that I did not know which one was which and I told her that this is what she got paid to do. I am still at it with them
             Welcome to VBN and thanks for you service...I'm sure you could find your way around..start your "New Topic" in order to get others to respond...
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pgwvet
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Joined: 08 Jun 2008, 00:42

12 Apr 2012, 16:12 #74

bjpayne wrote:I came off Active Duty in 2007 and I processed my first claim myself and received a rating og 60%. A year later my conditions were worsening and when I began to see my monthly therapist she diagnosed me with PTSD and depression and suugested that I put in a claim for that and let the VSO do it. Well our VSO is only at the VA once a week on Fridays from the hours of 08:00 AM to 12 noon that day. So, if you get there at 11:30 and 5 or 6 people are in front of you he will tell you to come back the following week? He is a veteran too and gets 100%. My problem is, I tried to allow the system to do the job for me the second time and my therapist assured me that this previous veteran was aware of PTSD being compensated to Gulf War Veterans and I have been in inpatient treatment for over 4 months and when I called him to check the status of my claim he told me that if the Decsion Review Officer has it then they are awaiting a decision. I called the VA every week and I stopped prior to me calling him because they were telling me the same thing. It has been since January 2009. I asked him how long does it take for the DRO to make a decision when he has all the medical documentation in front of him and that I thought maybe Reading was not a Requirement for the DRO when he got his job because we are over three years now. My sinus situation has also gotten worser to where I get up every morning and my eyes are automatically irrigating with running water time my feet hit the floor then my nose starts and its all day some days. I get allergy shots and sleep with a CPAP machine and they said that my sleep apnea was "service connected" but narlopesy was not and this is why I came off Active duty they knew my condition and they were sending places so far out and I could not stay awake and would have to pull to the side of the road so I wouldn't kill myself but while I was in Desert Storm it was a good thing someone was riding with me. Before I came off active duty I had my own office and it was beside the main door that you had to have a combination to get into and I would fall asleep at my desk every day and when I heard someone punching numbers in that door I would wake up like I had been awake all the time. I knew that it was time for me to go. My rpoblem is why do these people think that they have the power to talk to us any kind of way. I reported a supervisor at the VA that told me that I had so many claims in that I did not know which one was which and I told her that this is what she got paid to do. I am still at it with them
The DRO can take same time. Three years does seem a little long. if you are SC for your sinus now make sure to send in a 4138 to say they are worst.
Who said the sleep apnea was service connected? that is a ruling the VARO can only make. The doctors may think it should be and may find a nexus to your service that will aid in the granting of the SC.
Your SA could be due to your sinus problems too. if they are SC and SA can be SC as a secondary to them.
James A. Bunker
Executive Director
National Gulf War Resource Center
1725 SW Gage Blvd.
2nd Floor #200
Topeka, KS 66604
Gulf War Illness Guide
http://kansasvets.org
Like us on Facebook
http://www.facebook.com/ngwrc
HTTP://WWW.NGWRC.ORG
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Fishingguy
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Joined: 03 May 2012, 01:15

03 May 2012, 01:15 #75

With regards to GWI, following my service in the First Gulf War, I came down with an unidentifed neurological illness affecting both my peripheral and central nervous systems. This illness was on top of a number of service connnected injuries to include PTSD, spinal damage, a broken foot, tinnitus, a chronic rash and a number of soft tissue injuries. All of which were clearly documented in my military medical records, of which I made a complete copy prior to my being seperated from the military on medical grounds via the TDRL. Upon seperation from the military, I went to the VA and was rated by them following a comp and pen physical exam. My combined disability rating was set at 80%. Since that time the unidentified neurological illness has continued to slowly progress to the point where a number of autonomic and voluntary nervous system functions are being affected. In addition to the progress of this illness my other service connected injuries and conditions have continued to get worse. Last May I put submitted a request to have my case reopened and my rating increased. I then underwent a follow-on comp and pen. During that exam it was found that I have severely restricted movement of my left arm and a increased gate disorder. X-rays indicated that the arm is deteriorating and that something is breaking down the fatty tissue and muscle within the arm. At present my unidentified neurological illness is coded as MS for rating purposes. During the First Gulf War, due to the job I had, I came into direct contact with Iraqi nerve agents, to include sarin and cyclosarin. Testing following the war by toxicologists at Duke University and the University of Connecticut found high levels of auto-antibodies indicating possible exposure to nerve agents. The levels were 1200 times normal and the highest ever recorded levels found in a living human being to date. Testing by the Boston VA confirmed that the immune system of my body was sensitized to neuro filaments and that the brain stem and peripheral nervous system were being affected. To combat this condition I was given and number of experimental treatments to deactivate my immune system and regenerate the fatty coating on my nerve cells. All of that was about twenty years ago. My request for an increase to my disability rating had been pending a decision since October of 2012 and as of last Friday the final decision was made on it. I expect to have the results of that decision within the next week.

The difference between my claim and many of those I see here on this site is that I had complete documentation of all of my service connnected medical issues and of all test and lab results. This made it very difficult for the VA to deny my claim or a service connection.

With regards to Gulf War Illness, following the war I experienced all of the symptoms reported by Gulf War Veterans. I am in the Gulf War Registry and the VA, DOD, and National Institute of Health have had complete copies of all my test and lab results since the end of the 1st Gulf War and been tracking my medical condition since that war. I currently receive all of my medical care from the VA.

I know it seems as if the system is not supportive of service members, but encourage you to put in your claims and document everything.
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Fishingguy
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Joined: 03 May 2012, 01:15

05 May 2012, 20:04 #76

I recieved the Big Brown envelope today with the results of my rating increase.

My rating was raised from 80 to 90 percent, pending completion of speciality tests.

The key finding of the rating is that I suffer from an unidentified demyelinating disease, (claimed as MS for rating purposes).

The disease began during the 1st Gulf War, following my direct exposure to nerve agent.

Will provide more details following my follow-up tests
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Blackdog
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Joined: 11 Jul 2012, 05:44

10 Sep 2012, 17:41 #77

Anyone here have narrowing of the lower colon?  I've gone through numerous tests and the VA can't explain to me why I have IBS symptons, rectal bleeding, with no signs of palups or hemroids.  Going to the VA for medical help relating to service connected issues is like letting the fox guard the hen house.  Image
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iamdanieltuck
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Joined: 20 May 2012, 11:41

17 Sep 2012, 16:59 #78

I experience a wide variety of IBS symptoms, with Crohn's being ruled out, but never any mention of narrowing.  I have frequent bleeding and such, but that is attributed to Fissures.  Has your Dr order an abdomen MRI?

I have received high quality healthcare from the VA in Charleston, SC.  If you feel your care isn't up to par, contact the patient advocate for sure.

OAN: A new thread might catch a good deal more attention, as compared to a sticky.
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MelWaler
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Joined: 04 Dec 2012, 10:46

04 Dec 2012, 10:46 #79

GangGang is there anyway I can contact you.  I am also in UK and experiencing the same as you. It would be nice to speak to someone locally and talk over the issue as a team and maybe post our finding here. Cheers
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momkeller26
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Joined: 14 Jan 2013, 02:58

14 Jan 2013, 03:03 #80

My Husband served in the Navy for 6 years, 1988-1994. He served in the First Gulf War, 1990–1991 upon The USS Raleigh LPD 1.Operations Desert Shield/Desert Storm was completed on 17 April 1991. She left Morehead City, North Carolina in August 1990. The LPD 1 carried the Marine group LCU-1663, Embarked Marine units included the command staff of 1st Bn, 10th Marines, the command staff of 3rd Bn, 2nd Marines, and significant combat elements that included combat engineers, LAADs, AAVs, TOWs, tanks of 2nd Tk Bn, and I Btry 10th Marines, among others. Raleigh went through the Suez Canal in late August, 1990 or early September, 1990. The initial watch was to stay in the North Arabian Sea. She was involved in a number of exercises in Oman under the name Sea Soldier. Subsequently, she supported mine countermeasures missions operations off Kuwait City, and used six AH-1W Sea Cobra attack helicopters in CAP missions. So the LPD was right up on the beaches off the coast of Kuwait City and the coast line of Kuwait. So they were all exposed to the chemicals, fires, fumes, etc.


He has a very complex medical history. We filed for pension and compensation back in 2005 and got pension for about 2 months and they said that was a mistake so we are still paying that money back. They denied everything. He was so sick I didn't have time to appeal it back then. But now with the gulf war illness (GWI) that are undiagnosed and unknown issues. He fits into almost all the symptoms except for the female issues. We are now working on refilling as I speak. I have got all the paperwork and done research on it all but I just don't know where to begin to fight with the VA again. I guess I just don't know where to start with the refilling. It's a lot of paperwork, I have it all filled out again. I just don't want to get denied again. We live in southeastern Kentucky and there isn't any lawyers right here that will take on the battle with the VA. Is there any that you know of that are good and that would take the battle on for us. I just don't know if I can take on this battle once again with the VA. I just don't want to miss something such as proof and get denied again. I have 99% of my husband medical record already. I have a copy of his military medical record that we acquired when he got out from the ship he was stationed on at that time. I have the physical exam from going in with him having nothing wrong and then the physical exam upon his discharge and there was a lot wrong with him. I have other proof of the illnesses from doctor's and ER visits during his military time. So I just don't understand how they can deny things that went wrong medically during his service years. I just can't understand that at all. The first time we filed we used the BIG WORDS and I just don't think that they knew what they were because there wasn't that much info out there in 2005 about them. But all the symptoms of the BIG named disease are all symptoms of Gulf War Illness and things. Has anyone else ever been diagnosed with Fibromuscular Dysplasia (FMD) or Mesenteric Ischemia (MI). Here are all the symptoms that he has now. Is there any other Veterans out there that have issues like my husband. If so please let me know.

GI Issues
• Severe pain after eating
• Abdominal pain/Chronic Pain
• Nausea
• Vomiting
• Altered bowl movements (diarrhea and constipation in same movement)
• Indigestion
• Bloating/fullness
• Gastrointestinal disease
• Burning pain
• Tenderness in abdomen
• Muscular spasms
• GI surgery
• GERD
• Angina
• Loss of appetite
• anemia
• IBS
• Weight loss—put on TPN in 2005-2006



Heart Issues
• Cardiomyopathy
• CAD
• Artery disease
• Varicose veins
• Hypertension
• Muscles in the heart don’t function properly
• Pain in walking ( limited on walking)
• Angina
• Modeling in the thighs area from poor circulation
• Circulation issues in the whole body
• Light headedness
• Weakness
• Dizzy spells
• Has no energy


PTSD
• Extremely caution of everything
• Sits in the corner when out in public (always wants to see what’s coming at him)
• Anxiety
• Mood Swings
• Always on alert
• Nightmares from Gulf War Times
• Re lives certain things
• Night chills
• sweating
• Insomnia
• Wakes up and checks out the windows and doors all night and does the same thing during the day.
• Paces in the house
• Memory issues (getting very forgetful)
• Can’t concentrate on anything (gets side tracked every easily)
• Has issues finishing a task
• Doesn’t like to be in unfamiliar places or with people he doesn’t know


Arthritis
• Knee, injured in the military on USS Kennedy CV 67 while in the ship yard in Philadelphia. When he got out of the military in Feb 1994 he was still walking with a cane.
• Lower back pain
• Hip pain
• Shoulders pain

Myalgia
• Widespread pain
• Insomnia
• Morning stiffness
• Memory problems/issues
• Headaches
• Muscle and joint pain


Chronic Fatigue Syndrome
• Always tired, not relieved by sleeping/napping
• Memory issues (getting very forgetful)
• Loss of memories
• Can’t concentrate on anything (gets side tracked every easily)
• Has issues finishing a task

Undiagnosed Illness/Multi-symptom Illness
• Fatigue
• Cardiovascular disease (CAD)
• Muscle and joint pain
• Headaches
• Neurological and psychological issues
• Skin conditions (warts on hands and arms)
• Respiratory disorders – Asthma,
• Sleep disturbances (insomnia)
• IBS
• Altered bowl movements (diarrhea and constipation in same movement)
• Night chills
• Night sweats
• Involuntary muscle spasms
• Light headedness
• Weakness
• Dizzy
• Anemia
• Bruises easily
• Low testosterone levels

If anyone can help us please let me know by using the PM system.


Thank you so much,

Keller Family


Private email removed for your own protection. - Rotor Head
 
Last edited by momkeller26 on 27 May 2013, 14:36, edited 1 time in total.
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