12 week/Nuchal Update, FRUSTRATED

12 week/Nuchal Update, FRUSTRATED

Teresa
Teresa

July 3rd, 2012, 6:59 pm #1

So just back from the doctor, not a great visit.

The tech couldn't get a measurement because the baby wouldn't cooperate and get into the position she needed it to. She had me cough, lay on my right side/left side...NOTHING! S/he was very active and was in the right position for a nano second but the tech couldnt get the measurement. Said it looked "thin" which she said is a good sign, but of course she needs that number. The heartrate was 164 and she could see a nasal bone, 2 arms 2 legs, brain looked good, everything else good. The baby had its little legs crossed and was waving, then took its hand and put it up to its face, cute stuff. But CRAPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPP!!!!!!!!!!!!!

She said this happens all the time but it didn't make me feel any better, (and not sure I believed that but thats me being neurotic) Of course my dr tried to make me feel better by telling me it was a good sign that the baby was active and the heart was beating strong...Ugh, I had so much anxiety for today and now nothing.

So the dr wants us to go to the hospital for the scan, we are going this Thursday at 1. When we called for the appt, the girl was like "I have Monday the 9th" and I burst into tears and gave her a sob story and she had mercy on me and booked me for Thursday- AMEN!

Please if you pray, can you pray that Thursday they can get a measurement for this child because I am SLOWLY losing my mind, nothing is ever easy and it's frustrating. I want to breathe a little easier.....

And of course, I asked to get my P4 tested and 2 nurses stuck me 4 times and couldn't get blood. SO ANNOYED so I will have to get THAT tested thursday as well.

Im taking out my frustration right now on Ben and Jerrys frozen brownie yogurt and it's helping somewhat....
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Ariadne
Ariadne

July 3rd, 2012, 7:01 pm #2

I'll know you'll worry no matter what, which is normal, but FWIW, I had the same thing happen to me.
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Teresa
Teresa

July 3rd, 2012, 7:24 pm #3

Did it work out for you? What happened?

the tech asked me if we were doing an amnio and i told her we wanted to see the results of this scan before deciding...4 losses and I am too scared to take any chances...
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Ariadne
Ariadne

July 3rd, 2012, 7:29 pm #4

I was trying to remember. I think we did, but he never did cooperate.

Yes, he's 2 now & he's 100% fine.

I did DE, so I was less concerned about age-related issues, but I did not consider any further testing regardless b/c I have immune issues & the risk is a bit higher or so it is thought.
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Teresa
Teresa

July 3rd, 2012, 7:39 pm #5

I don't blame you.

I'm going to be 40 in 4 weeks so I am extremely nervous about my AMA and the outcome...what will be will be, we will love whatever God gives us, but I would love to have a little peace of mind with this and know that all is "okay".
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Erin
Erin

July 3rd, 2012, 8:03 pm #6

So just back from the doctor, not a great visit.

The tech couldn't get a measurement because the baby wouldn't cooperate and get into the position she needed it to. She had me cough, lay on my right side/left side...NOTHING! S/he was very active and was in the right position for a nano second but the tech couldnt get the measurement. Said it looked "thin" which she said is a good sign, but of course she needs that number. The heartrate was 164 and she could see a nasal bone, 2 arms 2 legs, brain looked good, everything else good. The baby had its little legs crossed and was waving, then took its hand and put it up to its face, cute stuff. But CRAPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPP!!!!!!!!!!!!!

She said this happens all the time but it didn't make me feel any better, (and not sure I believed that but thats me being neurotic) Of course my dr tried to make me feel better by telling me it was a good sign that the baby was active and the heart was beating strong...Ugh, I had so much anxiety for today and now nothing.

So the dr wants us to go to the hospital for the scan, we are going this Thursday at 1. When we called for the appt, the girl was like "I have Monday the 9th" and I burst into tears and gave her a sob story and she had mercy on me and booked me for Thursday- AMEN!

Please if you pray, can you pray that Thursday they can get a measurement for this child because I am SLOWLY losing my mind, nothing is ever easy and it's frustrating. I want to breathe a little easier.....

And of course, I asked to get my P4 tested and 2 nurses stuck me 4 times and couldn't get blood. SO ANNOYED so I will have to get THAT tested thursday as well.

Im taking out my frustration right now on Ben and Jerrys frozen brownie yogurt and it's helping somewhat....
I really hate to be the "bright side girl", and I don't by any means want to ruin your Ben and Jerry's yogurt-eating fest, BUT, I can't help myself here... Let's take a step back. There could have been a few outcomes today: 1) Everything could have looked perfect and measured perfectly and you could have been on your way. 2) There could have been something somewhat worrisome that you would have had to go back for. 3) There could have been something very worrisome, or worse... So, what you got was a wiggling, face rubbing, active baby with a perfect heartbeat. No, you didn't get your answers today which is frustrating, but you got the beautiful bouncing baby. Just a different perspective...

On amnios, I don't know if your OB has talked to you about the new fetal DNA test. It's called the "Sequenom MateriT21 Free Fetal DNA" test and it's new, but supposedly very accurate and an alternative to amnio (this according to my OB's office). It's just a blood test (like any other) as opposed to the more invasive amnio. My OB's office said it would likely be covered by insurance if I had a concerning NT scan, but perhaps with a co-pay (I have no idea how much that would be). I considered not doing the NT scan b/c I'm unwilling to do the amnio as a f/u, but I was convinced to do the scan b/c of having this option. Just wanted to throw that out there b/c it's new and I'm not sure everyone is being told about it.

Good luck on Thurs. I have a feeling everything will be just fine .
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Teresa
Teresa

July 3rd, 2012, 8:15 pm #7

Hmm. My OB never told us about that test. I will discuss on Thursday with the hospital. Thanks for the info.

She's starting to grate my last nerve because again today when I told her I wanted my P4 tested, she started a dissertation about P4 and the placenta taking over and how they never test P4 blah blah blah....you could have stopped at 8 weeks. WELL- I cut her right off and told her "Im paying for it, I want it, end of discussion, this is what's good for ME" Sort of sick of the eye rolling. I'm not going to switch drs at this point but there are 5 other drs in the practice and I am going to see a different one next time. I don't know what her issue is lately but that eye rolling is getting OLD.

I know the good points are all there and we LOVED seeing the baby so active and so cute, it was precious....but I want that measurement. I know so many people breathe a sigh of relief when they have it and I just want to be able to rest a little easier, ya know?
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Sara H
Sara H

July 3rd, 2012, 10:04 pm #8

I am with Erin on this. Yes, it will be great when it is done but it's still not 100%, just makes you feel better, you know? They did your blood test, right? So that will tell you some info and it the tech said "it looks thin" then take heart in that. As someone who has had a "worrisome" US at 20 weeks TRUST ME if they think something is wrong they will shut up really quickly and not say ANYTHING.

And: About the other blood test,
I was told all about this by my specialist at one of my scans, he was totally jazzed about it and said it would soon be "standard practice". But, at least in the NY area, it seems to be NOT covered by most insurance since it is unproven, for now, enough to make the insurance companies happy. And it was a 450$ test. So, we were thinking about it until I went to my OB and she said, as of now, the data is just not there and if we got an iffy result she'd still recommend the amnio.

So, talk to your people, get their thoughts and then look into it. I bet it's the next big thing but good to have their input first, I think.

Good luck and next time you need a blood draw drink lots the day before, it foes help. (I know, I am on a crazy "drink water!" kick but it really does help!)

Hope you get the answer you are looking for on Thursday but all seems really good to me!
Hugs,
Sara H
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mel
mel

July 3rd, 2012, 10:17 pm #9

as the others have said, there is reassurance in the scan you did have. Granted, it's not the scan you were hoping to get today, which is frustrating, but all is good with your little one, which is great! The waiting definitely sucks, but only two more days and hopefully the little one will be more cooperative then.

The blood test Erin was talking about is fairly new, there are two different companies that do them, I believe, but are generally the same tests...Materniti21 and Harmony something or other. In my experience in CA, they are not covered by insurance. They are very different from an amnio though. This tests for downs syndrome and trisomies only, and not the slew of other tests the amnio does. I had a friend who had the Materniti21 test (paid out of pocket) and she said the research said it was 99% accurate for predicting downs syndrome and trisomies. My OB said it is still a new test and all the data isn't in on it. I'm sure every dr will have their own opinion about it. But, just wanted you to know it is very different than what an amnio tests for.

For now, try to take solace in the scan you had today with your little gal/guy moving all around and a strong hb to boot! Hoping for cooperation on Thursday!
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Sara H
Sara H

July 3rd, 2012, 10:31 pm #10

We must have been writing at the same time!



Hugs!
Sara H
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