My update

Joined: January 22nd, 2017, 9:43 am

February 16th, 2018, 7:53 am #1

As you know, I had a doubling low beta.. At 5+6 they did a scan even though beta was only 250, their fear is it was ectopic.. They scanned me for 30 minutes and suspected an ectopic.. I had to go in for an emergency left tube removal. My RE was certain it was ectopic and said he'd try to save my tube, but it was all dependant on what he saw when he went in.. He did say if he couldn't see ectopic he would give me a D&C, but he didn't think that was likely in my case but told me anyway just in case of a miracle!

Went in and came out feeling like I was bleeding! So turns out it wasn't ectopic after all, so I got a D&C (not sure why he did that, considering it may have just been an embryo that implanted a bit late).. So what were they seeing on the scan?? A freaking 2x2x2 marble like growth in my abdomen! My RE thought it may have been an abdominal pregnancy but it turned out to me a reaction to the anti adhesive gel used after my last endo surgery! 😱😱

He also found ENDO, a lot of it!!!! Wtf? Turns out last RE didn't remove all of it..

Anyway, long story short is my current RE doesn't want to do anymore IVF cycles until my endo is come rely resected.. I've decided to go in search of the country's best endo surgeon, who I've found but of course it means MORE waiting to see him.....

I got a period 7 days after my lap and D&C and I think today is day 3... My FSH is so high but I don't know if it's accurate after a D&C? My HCG took a week to get back to 0..

FSH was 18.1
LH was 4.5
Estrogen was 47
Progesterone was 0.31

My FSH until now has always been 8 and only once 10.5..

Is this now a representation of what my FSH will continue to be??
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Anonymous
Anonymous

February 16th, 2018, 4:02 pm #2

Sorry to hear your recent issues. Only time will tell on your FSH..
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Joined: January 22nd, 2017, 9:43 am

February 16th, 2018, 8:23 pm #3

You're right, I have to wait and see.

Still, really glad this all happened because I didn't know about the endo!!!! And I would never have known!

My RE says if I want to do donor egg in the future, the endo must go first.

Interesting thing is when they removed the growth my estrogen started to behave.. So weird..
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Joined: September 23rd, 2017, 2:12 am

February 17th, 2018, 1:27 am #4

Hi Penny,

What was your E2 at baseline in previous cycles? How does it compare to this cycle? How many follicles did they see this time at baseline? If your estrogen and AFC went down this time, makes sense for your FSH to go up.

You're not DOR, right? Hopefully you aren't. I think to treat your endo, your doctors will have to put you in a menopausal state, which means your FSH will go up... I've heard that some DOR women's ovaries never recover from these treatments, and their menopausal state becomes permanent. Something to keep in mind.
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Joined: January 22nd, 2017, 9:43 am

February 17th, 2018, 5:10 am #5

Hi WoofMeowOink, my oestrogen after my last endometriosis excision (which was done appallingly) was normally the following month but then after that it was trending upwards... usually over 70.. prior to excision surgery it would be between 50-65.. i can't help but wonder if that huge growth was causing the oestrogen to rise, because the minute it was removed my oestrogen immediately went down!!

This is the first month I have seen the oestrogen level below 50... !! Usually estrogen is anywhere between 6-8 and LH is between 0.7 and 2.. I hope this is because I had HCG in my system 7 days earlier.. plus i only really got a period because progesterone went down after HCG started to go down..

Don't know what's happening but now waiting for aggressive endometriosis surgery.. and going to bite the bullet and pay the exorbitant costs to do Dr Braverman's extensive immune testing so I can either go back to trying naturally or do IVF post surgery.. I am fast running out of time so the surgery must happen in the next month and i have 3 months to succeed with IVF or naturally as endometriosis tends to return post 3 months..
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Anonymous
Anonymous

February 17th, 2018, 4:40 pm #6

I hope you van have surgery soon. So if it is either your eggs or donor eggs your window is 3 months I gather. Maybe line up some frozen donor eggs to add to your retrieval/ attempts.
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Joined: June 10th, 2014, 6:19 pm

February 19th, 2018, 8:39 pm #7

As you know, I had a doubling low beta.. At 5+6 they did a scan even though beta was only 250, their fear is it was ectopic.. They scanned me for 30 minutes and suspected an ectopic.. I had to go in for an emergency left tube removal. My RE was certain it was ectopic and said he'd try to save my tube, but it was all dependant on what he saw when he went in.. He did say if he couldn't see ectopic he would give me a D&C, but he didn't think that was likely in my case but told me anyway just in case of a miracle!

Went in and came out feeling like I was bleeding! So turns out it wasn't ectopic after all, so I got a D&C (not sure why he did that, considering it may have just been an embryo that implanted a bit late).. So what were they seeing on the scan?? A freaking 2x2x2 marble like growth in my abdomen! My RE thought it may have been an abdominal pregnancy but it turned out to me a reaction to the anti adhesive gel used after my last endo surgery! 😱😱

He also found ENDO, a lot of it!!!! Wtf? Turns out last RE didn't remove all of it..

Anyway, long story short is my current RE doesn't want to do anymore IVF cycles until my endo is come rely resected.. I've decided to go in search of the country's best endo surgeon, who I've found but of course it means MORE waiting to see him.....

I got a period 7 days after my lap and D&C and I think today is day 3... My FSH is so high but I don't know if it's accurate after a D&C? My HCG took a week to get back to 0..

FSH was 18.1
LH was 4.5
Estrogen was 47
Progesterone was 0.31

My FSH until now has always been 8 and only once 10.5..

Is this now a representation of what my FSH will continue to be??
Dear Penny, I am so sorry for what you're going through. But at least it is good that you detected that endo is still a problem.

Unfortunately, I don't know much to help with information about endometriosis, but I think it is essential to find the best surgeon for it. Is it really that endo will return in 3 months?? I think you still have a good reserve, but the real problem would be having such a small window for doing IVF. And really, would the endo be so severe that you could not do IVF with it? An RE with extensive endo experience would also be very important.

I know how hard the waiting must be. I would also double-check with another RE, to check if IVF is at all possible before a new surgery. Perhaps you could still do embryo banking before the surgery.

Sorry I cannot help more... But I am with you with my heart.


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Anonymous
Anonymous

February 19th, 2018, 9:18 pm #8

If your window after surgery is truly so short get some donor eggs fertilized with husband sperm created so that at least you can try to carry,give birth to, and breastfeed your husband's child and be a mother. Time is of the essence it sounds like. Good luck.
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Joined: September 23rd, 2017, 2:12 am

February 21st, 2018, 5:28 am #9

Hi WoofMeowOink, my oestrogen after my last endometriosis excision (which was done appallingly) was normally the following month but then after that it was trending upwards... usually over 70.. prior to excision surgery it would be between 50-65.. i can't help but wonder if that huge growth was causing the oestrogen to rise, because the minute it was removed my oestrogen immediately went down!!

This is the first month I have seen the oestrogen level below 50... !! Usually estrogen is anywhere between 6-8 and LH is between 0.7 and 2.. I hope this is because I had HCG in my system 7 days earlier.. plus i only really got a period because progesterone went down after HCG started to go down..

Don't know what's happening but now waiting for aggressive endometriosis surgery.. and going to bite the bullet and pay the exorbitant costs to do Dr Braverman's extensive immune testing so I can either go back to trying naturally or do IVF post surgery.. I am fast running out of time so the surgery must happen in the next month and i have 3 months to succeed with IVF or naturally as endometriosis tends to return post 3 months..
At baseline, REs like to see your E2 at less than 50. If the growth was producing estrogen for some reason, it was also suppressing your FSH. So, makes sense that once removed, your e2 would drop and your FSH increase.

Is there any way you can do back-to-back IVF, just to retrieve and bank, before you treat the endo? That way, once the endo is under control, you could transfer during the 3-month window, without worrying too much about going into permanent menopause (if that's a risk in your case).
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Joined: January 22nd, 2017, 9:43 am

February 21st, 2018, 11:06 am #10

Hey honey, yes, I tend to agree with you. It seems two months after first endometriosis excision, my oestrogen was the highest it's ever been and trending upwards.. i'm thinking it was that growth producing all the oestrogen and mucking up all my cycles... so yes, as soon as it was removed, my oestrogen plummeted!

It's not recommended to do any cycles with endometriosis because the ovaries are bathing in the abdomen where the endometriosis is releasing toxins.. the follicular fluid is contaminated and will not produce any good quality blasts. That's been my experience and after chatting with Braverman, I need to stop and wait until all the endometriosis is removed before I can start an IVF cycle.

I've engaged Braverman to help.. He has spoken to my surgeon to explain what his technique is and what needs to be removed. I will have his extensive immune testing carried out on Monday. My endometriosis surgery (with a non-nook surgeon) is next Thursday... i'm very nervous...

Menopause isn't a risk for me.. it's just the endometriosis is causing issues.. once it's removed, I should see an immediate change in my hormone level.. then it's a 6 week wait to get Braverman's extensive 30 page report on what he considers is causing all the problems...

Let's see.... i'll let you know how I go..
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