Sorry for all the posts!

Sorry for all the posts!

Joined: September 30th, 2011, 8:08 pm

October 19th, 2011, 9:14 pm #1

I have been posting alot lately, so I apologize if it's annoying. I had a question though and you ladies seem to be quite knowledgable about this. I posted a few days ago that my RE wants to keep checking my number each month. He wants to see it get below 20...It was 27, before we can go ahead with any treatments. I know some of you ladies will disagree, but my question is, why do I have to wait for the number to go down? What would happen if we proceeded with a high number? Thank you
Quote
Like
Share

jnoels
jnoels

October 19th, 2011, 9:24 pm #2

First, no apologies needed for posting!

Second, as for your question about whether or not FSH needs to go down... I don't know the medical reasons. I do know that my RE doesn't get too worked up about my FSH unless other things - estrogen, follicles, etc - are also out of whack. If my FSH is high, but my estrogen is normal, rises like it should, and I get a mature follicle, then he says its ok.

Quote
Share

lucy999
lucy999

October 19th, 2011, 11:03 pm #3

I have been posting alot lately, so I apologize if it's annoying. I had a question though and you ladies seem to be quite knowledgable about this. I posted a few days ago that my RE wants to keep checking my number each month. He wants to see it get below 20...It was 27, before we can go ahead with any treatments. I know some of you ladies will disagree, but my question is, why do I have to wait for the number to go down? What would happen if we proceeded with a high number? Thank you
if too high, your body does not react well to stimms and shuts down. less than 14 is ideal. What about estinyl? Try it only from day 3 to like day 9 or so in your cycle. Also egg quality may not be very good with high fsh.
Quote
Share

Sara H
Sara H

October 20th, 2011, 12:11 am #4

I have been posting alot lately, so I apologize if it's annoying. I had a question though and you ladies seem to be quite knowledgable about this. I posted a few days ago that my RE wants to keep checking my number each month. He wants to see it get below 20...It was 27, before we can go ahead with any treatments. I know some of you ladies will disagree, but my question is, why do I have to wait for the number to go down? What would happen if we proceeded with a high number? Thank you
I was told when my FSH was in the high 20's that i would not respond to stimulating meds OR the stimulating hormones my body makes naturally. Dr. Check describers it as the FSH receptors in the body being burnt out or already full so can't take any more... Does that make sense?

However: If you body is making follicle and all that there is no reason not to try naturally. And, with the monitoring, you'll know exactly went is the perfect time. However, I don't know if your FSH is in that range if it is worth spending money on IUI unless your DH has issues as well.

What are they doing to lower your FSH? Unless they know what is causing it to be, usually low estrogen, it won't come down on its own, it will need help.

And: Post away! That's why we all come here, to get help and help others! I am currently in the 2ww, so this keeps me sane, thinking about other people and not myself! We all go though cycles, posting a lot and then not for a while. You are just getting started, of course you have tons of questions! Better to ask them and have the info!

Hugs to you!
Sara H
Quote
Share

Joined: September 30th, 2011, 8:08 pm

October 20th, 2011, 12:02 pm #5

Thank you..My mom went into early menopause at 39...Im a little younger than her but the RE is pretty certain it is genetic in my case..Who knows, my mom could have started even earlier but she was done having kids by 30. So it may just not have been detected until she was 39. If I'm understanding correctly there isn't much they can do to lower the number. This is coming from one of the mose reputible fertility clinics in the Northeast too. So I don't know. That is also why in a way I don't even want to bother with all this and just go right to donor. I know it may seem extreme, but my number is so high and my amh so low. I do have a feeling the eggs I was producing when I got pregnant twice last year may not have been good quality either...hence the m/c. Plus both times there was nothing in my uterus. I haven't been able to get pregnant for a year now. To me it just seems like I'm not producing ANY eggs at all. It just seems hopeless. At this point I don't really have the time to make a trip to see this Dr. Check everyone is talking about either. This RE I'm working with I really do like and spite what everyone is saying, one of his specialties is high FSH. I'm just wondering if different doctors have different opinions. I don't know. The whole thing is so devestating and consuming. Thanks for listening.
Quote
Like
Share

Sara H
Sara H

October 20th, 2011, 1:49 pm #6

As for your Dr.: Just because we haven't heard of him doesn't mean he's not perfect for you! There is no one on the board from your area, he could be the best Dr. in the county, for all we know, and he is will to work with you so that's a win! If you like him and he is helping you then that is perfect!

BUT: on the matter of lowering FSH:
I don't say this often but your Dr. is wrong about this. You certainly can lower FSH.
How do I know? Mine came down from two steady years of being in the high 20's and at one point over 50 to, now between 3-6 for 4 months solid. Not 'someone I heard of' or some 'friend of a freind' but me!

Now, he might well mean he doesn't think lowering it will do any good. I can't fault him for that, most Dr.s feel that way becasue that is what they were taught. My dr. DOES think it makes all the difference to lower it... but on the other hand I have never had a BFP, either, so who knows! What I do know is that he lowered my FSH and stopped me from premature menopause, which in itself is a huge win for me!

OK, you mentioned "I do have a feeling the eggs I was producing when I got pregnant twice last year may not have been good quality either...hence the m/c. Plus both times there was nothing in my uterus."

So, they were in the tubes? If I may ask, and I am so sorry, were how far along were you? Did you have any testing done? If not it could be the placement, not the eggs. If they are not in the right spot they can't grow and that has nothing to do with quality! The fact that you had two PGs is a great sign!

I know you are feeling down, I totally get that! But, if you chose to you can keep trying and see what happens. I also totally understand wanting a child by a certain age. If that is part of your plan and donor egg is possible for you then go for it! It's a great option!

Google "ethinyl estradiol", that is the drug that lowered my FSH
Just to be clear, I seem to be the poster child of the best response to this. It does not work for everyone. Some ladies even get a rebound after they take it and stop and their FSH jumps. But then it usually comes back. For me I only took two sets of it 5 months ago and my FSH has stayed low ever since. Again, my response is ideal but not typical and I still haven't gotten a BFP.

Here is some other good reading that might help:
http://en.wikipedia.org/wiki/Poor_ovarian_reserve (yes, it's Wiki, but it is very well sited and well written.)
Here is a good bit about why to lower FSH: (Don't worry about the IVF part, just read though)
http://highfshinfo.com/?page_id=57

And if you Google: "Ethinyl estradiol, Dr. Check, lower FSH" : you can find some of his (hard to read if your not a dr) articles on this same subject. I don't know how open your Dr. might be to this approach but what if you found bunch of these articles and asked if you could try this approach as an experiment?

It can't hurt to lower the FSH number, it may help, and it might be worth a try.

Hugs to you and hang in there, I know this is overwhelming but you can do it! You know what your goal is, to have a child, so you just have to find the right path for YOU! I am not saying this is it, I just want you to have the info!

I hope this helps!
Sara H
Quote
Share

Alli
Alli

October 20th, 2011, 2:35 pm #7

Thank you..My mom went into early menopause at 39...Im a little younger than her but the RE is pretty certain it is genetic in my case..Who knows, my mom could have started even earlier but she was done having kids by 30. So it may just not have been detected until she was 39. If I'm understanding correctly there isn't much they can do to lower the number. This is coming from one of the mose reputible fertility clinics in the Northeast too. So I don't know. That is also why in a way I don't even want to bother with all this and just go right to donor. I know it may seem extreme, but my number is so high and my amh so low. I do have a feeling the eggs I was producing when I got pregnant twice last year may not have been good quality either...hence the m/c. Plus both times there was nothing in my uterus. I haven't been able to get pregnant for a year now. To me it just seems like I'm not producing ANY eggs at all. It just seems hopeless. At this point I don't really have the time to make a trip to see this Dr. Check everyone is talking about either. This RE I'm working with I really do like and spite what everyone is saying, one of his specialties is high FSH. I'm just wondering if different doctors have different opinions. I don't know. The whole thing is so devestating and consuming. Thanks for listening.
That usually indicates that they are not truly high fsh friendly. My old RE was the "best" in my state but would only go with 5 follies. Impossible for me. As for the FSH/quality thing, read this study:

http://www.ncbi.nlm.nih.gov/pmc/article ... ool=pubmed
Quote
Share

lucy999
lucy999

October 20th, 2011, 2:50 pm #8

As for your Dr.: Just because we haven't heard of him doesn't mean he's not perfect for you! There is no one on the board from your area, he could be the best Dr. in the county, for all we know, and he is will to work with you so that's a win! If you like him and he is helping you then that is perfect!

BUT: on the matter of lowering FSH:
I don't say this often but your Dr. is wrong about this. You certainly can lower FSH.
How do I know? Mine came down from two steady years of being in the high 20's and at one point over 50 to, now between 3-6 for 4 months solid. Not 'someone I heard of' or some 'friend of a freind' but me!

Now, he might well mean he doesn't think lowering it will do any good. I can't fault him for that, most Dr.s feel that way becasue that is what they were taught. My dr. DOES think it makes all the difference to lower it... but on the other hand I have never had a BFP, either, so who knows! What I do know is that he lowered my FSH and stopped me from premature menopause, which in itself is a huge win for me!

OK, you mentioned "I do have a feeling the eggs I was producing when I got pregnant twice last year may not have been good quality either...hence the m/c. Plus both times there was nothing in my uterus."

So, they were in the tubes? If I may ask, and I am so sorry, were how far along were you? Did you have any testing done? If not it could be the placement, not the eggs. If they are not in the right spot they can't grow and that has nothing to do with quality! The fact that you had two PGs is a great sign!

I know you are feeling down, I totally get that! But, if you chose to you can keep trying and see what happens. I also totally understand wanting a child by a certain age. If that is part of your plan and donor egg is possible for you then go for it! It's a great option!

Google "ethinyl estradiol", that is the drug that lowered my FSH
Just to be clear, I seem to be the poster child of the best response to this. It does not work for everyone. Some ladies even get a rebound after they take it and stop and their FSH jumps. But then it usually comes back. For me I only took two sets of it 5 months ago and my FSH has stayed low ever since. Again, my response is ideal but not typical and I still haven't gotten a BFP.

Here is some other good reading that might help:
http://en.wikipedia.org/wiki/Poor_ovarian_reserve (yes, it's Wiki, but it is very well sited and well written.)
Here is a good bit about why to lower FSH: (Don't worry about the IVF part, just read though)
http://highfshinfo.com/?page_id=57

And if you Google: "Ethinyl estradiol, Dr. Check, lower FSH" : you can find some of his (hard to read if your not a dr) articles on this same subject. I don't know how open your Dr. might be to this approach but what if you found bunch of these articles and asked if you could try this approach as an experiment?

It can't hurt to lower the FSH number, it may help, and it might be worth a try.

Hugs to you and hang in there, I know this is overwhelming but you can do it! You know what your goal is, to have a child, so you just have to find the right path for YOU! I am not saying this is it, I just want you to have the info!

I hope this helps!
Sara H
had fsh as high as 22 and low as 9. Every time I got pg, was because fsh was lowered to less than 13. You can actually let your body lower it by itself. For me, at on Day 3, fsh is high, I sometimes retest on day 8 or so, and it is usually like 10 by then. then i start stims.
Quote
Share

Joined: August 6th, 2011, 6:43 am

October 20th, 2011, 4:40 pm #9

That usually indicates that they are not truly high fsh friendly. My old RE was the "best" in my state but would only go with 5 follies. Impossible for me. As for the FSH/quality thing, read this study:

http://www.ncbi.nlm.nih.gov/pmc/article ... ool=pubmed
I told my RE I wanted to proceed with a retrieval even if there was only one follie and he agreed that is what they would do. That would indicate if your RE is fsh friendly or not or only concerned with their success statistics.
Quote
Like
Share

Joined: August 6th, 2011, 6:43 am

October 20th, 2011, 4:49 pm #10

I have been posting alot lately, so I apologize if it's annoying. I had a question though and you ladies seem to be quite knowledgable about this. I posted a few days ago that my RE wants to keep checking my number each month. He wants to see it get below 20...It was 27, before we can go ahead with any treatments. I know some of you ladies will disagree, but my question is, why do I have to wait for the number to go down? What would happen if we proceeded with a high number? Thank you
Have you tried anything to lower your FSH level so you can do an IVF cycle? I don't know if it really works or not but I did accupuncture for several months. I don't have a previous FSH number to compare it to but my FSH number was good when it was tested and I was 43 years old. I think it may have been due to all the healthy things I was doing, eating very healthy, no sugar, no alcohol, accupuncture, I even did the wheat grass powder for months, lots of exercise.

I may have been lucky and just got a good reading that month. I don't know. I never tested my FSH level again. But you could try these things to see if it helps.

I wish you luck.
Quote
Like
Share