OT: thanks / hope it is OK to mention survey project one more time

OT: thanks / hope it is OK to mention survey project one more time

Joined: September 6th, 2003, 10:09 pm

March 22nd, 2012, 8:11 pm #1

Hi, Ladies,

I just wanted to post quickly to thank those of you who took (and/or who helped circulate the invitation about) the survey project below. We have gotten a handful of responses, and I am really excited about rolling this research out to a larger audience soon and hopefully down the road being able to better understand how people make decisions about infertility treatments and other family-building alternatives and who they turn to for advice -- and to share that information (publish our findings) with the medical community in hopes it may help them advising patients as we travel this rough road.

I am planning to meet next week with my colleague Kathryn Flynn at which point we'll look over the answers we've received and make triple-sure (we have already made double-sure!) that the questionnaire is working right and hopefully isn't proving confusing or offending anyone.

I can see in the online system that there are about half-a-dozen questionnaires that people started but haven't finished. If any of you started a questionnaire and are intending to go back and finish it, (or passed the link along to friends and think it would be appropriate to send a reminder asking them if they intended to but haven't had a chance to finish), there is still time to do that. Obviously you may not want to, and that's fine too; since the questionnaire is anonymous I have no way of contacting people other than by posting a general reminder here.

I've pasted the invitation below under my signature as it contains the link to the questionnaire. Anyone who started one and selected the option that sets it to save partially completed answers should be able to get back to where they were using that link.

Again, many thanks to those of you who were willing to fill out a questionnaire and/or to email friends about it. I'd be delighted to answer questions and/or have any input you can provide about the project. And I hope each and every person dealing with infertility will be able to have the child or children they dream of.

Best wishes,
Alex


Invitation
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Research Project: Drs. Kathryn Flynn and Alexandra Cooper, both at Duke University, are conducting a survey of individuals and couples who are currently dealing with challenges in growing their families. The survey typically takes about 30 minutes to complete and collects information about how people get advice and support and how they make decisions as they consider and pursue infertility treatment and/or adoption. Responses can be anonymous and all responses will be kept confidential in transcripts and research publications. If you are interested in participating, please visihttp://www.tinyurl.com/growing-your-family to access the questionnaire directly, or e-mail Alexandra Cooper at cooper@duke.edu.
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Sara H
Sara H

March 25th, 2012, 4:09 pm #2

I started doing this survey and did a bunch but then it stated getting very odd with my computer and sending info to other sites. Then is was asking for more and more data, email addresses and such.

I want to help, I really do, and I put a lot of time into this already but it stated making me rather unsure and so I stopped.

I am sorry but the survey itself has so odd computer glitches in it, sending info to unsecured sites and asking questions that were getting to be too much personal info, so I stopped.

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Joined: September 6th, 2003, 10:09 pm

March 26th, 2012, 2:08 am #3

Sara H,

Thanks for this message and for your willingness to start the questionnaire and to report here about your concerns and the problems you had; I'm sorry it gave you trouble. The Qualtrics survey software I'm using for the questionnaire has generally been a pretty reliable system and I've taken the questionnaire myself a number of times (test-driven it, in effect) to make sure it worked so I'm concerned if there are problems in how it is working.

Out of curiosity, what browser were you using? I tested in mostly in Google Chrome (and sometimes in Internet Explorer), so maybe if you can let me know that I can figure out if a different browser is causing glitches (or maybe you are finding glitches I didn't see in one of those browsers). I certainly don't want it to be creating problems.

It is true I ask if people are willing to provide an email for your spouse/partner (if applicable) and I do ask about names of people you talk with about infertility and treatment. But there is a way to say up front that you don't want to provide any names (in which case you then shouldn't see that part at all), and please know it is perfectly fine to leave any part of the questionnaire blank.

I hope this helps, and I do appreciate your willingness to try it.

Best wishes,
Alex
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