I am GOING NUTS, I'm lost and dont know what to do-

I am GOING NUTS, I'm lost and dont know what to do-

teresa
teresa

February 23rd, 2012, 12:43 pm #1

I'm so sorry to be a HUGE PITA with this-

I've been up all night, the entire night, researching fibroids and I read more than not, to leave them alone. That more harm can come from removing. I went to all the boards on here and so many women were advised to leave them alone

I dont know what to do
Im seeing my regular OB-GYN today to see what she says. All I have are the pictures they took yesterday.

Again, going by what dr B rasile said, its 2cm in a 4 cm space on the top of the uterus causing compression and could cause a miss- cutting off babys blood supply or an early miss..

But why am I seeing so many say they were told to leave it alone and that so many people get PG with them?

Should I trust that what she says and have it removed.

**My obgyn is not an RE, but she says she does this surgery. I read to go to someone who REALLY knows what they're doing but since this Dr did my lap and D+C, I do trust her, we have a good relationship. She's not cocky either, when she couldnt find the babys heartbeat the second u/s, she even said "go have another person do an u/s just in case" So I know she would tell me if she didnt think she could do it.

This has thrown me over the edge. I feel like removing it will cause issues- scar tissue...can cause FSH to go up, there can be complications in the surgery resulting in a full hsyterectomy. And leaving it- could also be a problem.

Would you have it removed?
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DeeinNYC
DeeinNYC

February 23rd, 2012, 1:43 pm #2

Hi,

I just responded to your post below. I have several fibroids myself. They are outside of the uterus. They do distort my uterine cavity somewhat. I have researched this issue to death. The bottom line is that almost every Dr...including the legendary Dr. Schoolcraft at CCRM will tell you that there is no need to remove them unless they are inside your uterus or inside the uterine wall. One exception is a type of fibroids that grows like stalks outside the uterus. My Dr told me over and over again that there was no need to remove mine and the risk of scaring was too great to risk removing mine which were outside of my uterus. Are your fibroids in the wall of your uterus? If so, I think most will say they need to be removed. If on the outside...most will say leave them alone. Of course, there are a small number of women for whom fibroids on the outside will in fact be an issue. If you have ruled out all other issues as a cause for implantation failure or m/c's...then this might be the issue.
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Joined: August 23rd, 2011, 3:50 pm

February 23rd, 2012, 1:52 pm #3

I'm so sorry to be a HUGE PITA with this-

I've been up all night, the entire night, researching fibroids and I read more than not, to leave them alone. That more harm can come from removing. I went to all the boards on here and so many women were advised to leave them alone

I dont know what to do
Im seeing my regular OB-GYN today to see what she says. All I have are the pictures they took yesterday.

Again, going by what dr B rasile said, its 2cm in a 4 cm space on the top of the uterus causing compression and could cause a miss- cutting off babys blood supply or an early miss..

But why am I seeing so many say they were told to leave it alone and that so many people get PG with them?

Should I trust that what she says and have it removed.

**My obgyn is not an RE, but she says she does this surgery. I read to go to someone who REALLY knows what they're doing but since this Dr did my lap and D+C, I do trust her, we have a good relationship. She's not cocky either, when she couldnt find the babys heartbeat the second u/s, she even said "go have another person do an u/s just in case" So I know she would tell me if she didnt think she could do it.

This has thrown me over the edge. I feel like removing it will cause issues- scar tissue...can cause FSH to go up, there can be complications in the surgery resulting in a full hsyterectomy. And leaving it- could also be a problem.

Would you have it removed?
Just this past week I've been emailing back and forth with a specialist on a possible upcoming surgery I am facing.

The doctor specializes in laproscopic surgery to remove endo but he does other type of gynecological surgeries. If you go to their website and fill out their paperwork and send any records you have, he gets back to you very shortly with a free second opinion.

I have a fibroid, smaller then yours and he advised me not to remove it, even though he thinks surgery for endo is a good idea for me. My original thoughts were "Just removed it while on the table and we'll be done with it" but his thoughts were that it is so small that it could create more scar tissue and more damage by removing it. Mine is also in a place that shouldn't affect a pregnancy and Dr. Bras.ile shared that opinion when I did IVF back in Nov.

Google centerforendo
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teresa
teresa

February 23rd, 2012, 2:19 pm #4

Hi,

I just responded to your post below. I have several fibroids myself. They are outside of the uterus. They do distort my uterine cavity somewhat. I have researched this issue to death. The bottom line is that almost every Dr...including the legendary Dr. Schoolcraft at CCRM will tell you that there is no need to remove them unless they are inside your uterus or inside the uterine wall. One exception is a type of fibroids that grows like stalks outside the uterus. My Dr told me over and over again that there was no need to remove mine and the risk of scaring was too great to risk removing mine which were outside of my uterus. Are your fibroids in the wall of your uterus? If so, I think most will say they need to be removed. If on the outside...most will say leave them alone. Of course, there are a small number of women for whom fibroids on the outside will in fact be an issue. If you have ruled out all other issues as a cause for implantation failure or m/c's...then this might be the issue.
then why would brasile say to remove it and tell me the risk in not removing it or risk of scar tissue is much less a concern to her than leaving it in?

as usuaul i get bad news and all the shit she told me went in one ear and out the other, she showed me where it is but even though i asked, i cant remember if its in the wall in the lining in the ute. all she said was its taking up alot of my uterus because its pressing on the lining and i have hardly any room in my ute.

she stressed leaving it in will cause me to lose another baby. the baby would die or the embryo would explode if it went up against the fibroid.

she told me to absolutely get it out.

so i am very hesitant here. and i dont have time to wait 2 monhts to see another RE they are not very accomodating. im freaking out.
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teresa
teresa

February 23rd, 2012, 2:21 pm #5

Just this past week I've been emailing back and forth with a specialist on a possible upcoming surgery I am facing.

The doctor specializes in laproscopic surgery to remove endo but he does other type of gynecological surgeries. If you go to their website and fill out their paperwork and send any records you have, he gets back to you very shortly with a free second opinion.

I have a fibroid, smaller then yours and he advised me not to remove it, even though he thinks surgery for endo is a good idea for me. My original thoughts were "Just removed it while on the table and we'll be done with it" but his thoughts were that it is so small that it could create more scar tissue and more damage by removing it. Mine is also in a place that shouldn't affect a pregnancy and Dr. Bras.ile shared that opinion when I did IVF back in Nov.

Google centerforendo
i would not do endo surgery. i did, in 2009. it can make FSH high. for me it helped with NOTHING- i still suffered every single month beyond comprehension. if i could go back i would not have that-
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DeeinNYC
DeeinNYC

February 23rd, 2012, 2:32 pm #6

then why would brasile say to remove it and tell me the risk in not removing it or risk of scar tissue is much less a concern to her than leaving it in?

as usuaul i get bad news and all the shit she told me went in one ear and out the other, she showed me where it is but even though i asked, i cant remember if its in the wall in the lining in the ute. all she said was its taking up alot of my uterus because its pressing on the lining and i have hardly any room in my ute.

she stressed leaving it in will cause me to lose another baby. the baby would die or the embryo would explode if it went up against the fibroid.

she told me to absolutely get it out.

so i am very hesitant here. and i dont have time to wait 2 monhts to see another RE they are not very accomodating. im freaking out.
First and foremost, you need to find out the exact location of the fibroid. Is it inside the wall of the uterine cavity or outside of the wall. I would just call and ask. If it is on the outside, maybe Dr. Bra.sile is concerned because it is severely distorting your uterus cavity or it is in a location that really is a problem. The text books are one thing, but she is actually looking at YOUR uterus. IMHO, if it is inside of the uterine wall...Dr. Bra.sile is likely right. If on the outside, she may also be correct but I would get a second opinion even though I know you are ready to just move forward.
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Joined: August 23rd, 2011, 3:50 pm

February 23rd, 2012, 2:52 pm #7

i would not do endo surgery. i did, in 2009. it can make FSH high. for me it helped with NOTHING- i still suffered every single month beyond comprehension. if i could go back i would not have that-
I've had two prior endo surgeries and my fsh went from 16 to 5. My AMH improved a little too. Currently I have an endometriomia which is causing my left ovary to be completely unresponsive to stims. This go around I plan on seeing an endometriosis specialist, not an reproductive endocrolonight for sugery. RE's tend to just diagnose and improve things enough to do IVF, my hopes are to improve things to try naturally.

I wasn't suggesting you have endo surgery, I was only suggesting you get a second opinion on your fibroid without incurring costs.
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teresa
teresa

February 23rd, 2012, 3:06 pm #8

I understand. I'm glad you had good results from your endo surgery. It's great your FSH went down. For many, it can make things worse.
Good luck!
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AJ
AJ

February 23rd, 2012, 3:08 pm #9

I'm so sorry to be a HUGE PITA with this-

I've been up all night, the entire night, researching fibroids and I read more than not, to leave them alone. That more harm can come from removing. I went to all the boards on here and so many women were advised to leave them alone

I dont know what to do
Im seeing my regular OB-GYN today to see what she says. All I have are the pictures they took yesterday.

Again, going by what dr B rasile said, its 2cm in a 4 cm space on the top of the uterus causing compression and could cause a miss- cutting off babys blood supply or an early miss..

But why am I seeing so many say they were told to leave it alone and that so many people get PG with them?

Should I trust that what she says and have it removed.

**My obgyn is not an RE, but she says she does this surgery. I read to go to someone who REALLY knows what they're doing but since this Dr did my lap and D+C, I do trust her, we have a good relationship. She's not cocky either, when she couldnt find the babys heartbeat the second u/s, she even said "go have another person do an u/s just in case" So I know she would tell me if she didnt think she could do it.

This has thrown me over the edge. I feel like removing it will cause issues- scar tissue...can cause FSH to go up, there can be complications in the surgery resulting in a full hsyterectomy. And leaving it- could also be a problem.

Would you have it removed?
if it's in the lining, like Dee mentioned, I would have it removed. I just couldn't continue to go through the emotional, physical and financial toll of IF treatments if I knew that there was a chance that the fibroid could interfere with implantation or cause another m/c. I know there are risks to having it removed, but I guess you have to weigh those against those of leaving it there. Get a 2nd, 3rd, 4th....opinion but ultimately you are going to have to take a leap of faith and make a decision that you can live with.

GL!
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teresa
teresa

February 23rd, 2012, 3:18 pm #10

one minute i want it out tomorrow. the next minute im freaking out second guessing what she said yesterday

just so scary.

she wasnt even like "its up to you" it was "this needs to come out"

I just called c ooper with a question and they got short with me and i ripped the nurse a new one. the NY ghetto in me does exist and im not going to tolerate being blown off

you raise a good point about the risk of another m/c and the expense (finacnial and emotional ) pf IF treatments.

will see what my obgyn says today

will probably make a choice very quickly- since i want to start ttc immediately as possible and this month is already freaking a no go. im cd 9 today. so upset another month down the f-ing drain.
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