Seen ENT #3 - Great guy- Professor K.. Kent Hospital

DippiePippie
DippiePippie

Jan 15 2018, 06:30 PM #1

Hi Everyone.
First Belated Happy 2018, better late than never!

Three updates really..
December - Finished my CBT sessions via Think Action mental health charity, can self refer again at any point.
Really helped me through the stresses of Christmas, as did Mindfulness app on my phone, along side my daily dose of Cai Graham, she did a motivational live talk daily on her Facebook page. As I delegated lots, and said no to people, Christmas was the most calm ever (that and my anti depressants and increased Serc dosage probably) ha ha

January - Finally saw my Physiotherapist for balance and all things ENT. Absolutely fantastic lady, two hours of going through my case, family history, diet and gave me some exercises to do. She feels its Meniere's with MAV.  crossover. Seeing her in two weeks.

Saw a new ENT professor today (as per title) Professor Kanegonkar, very thorough appointment, had another hearing test, hearing has decreased again since August. He listened to the last 11 months symptoms read notes and did balance tests, a manoeuvre similar to Epley, but just up and down with head tipped backwards, marching on a spot with eyes closed, walking heel to toe along a line and then I had another series of blood tests (six vials)

Mr K asked his colleague what he thought it was he said Meniere's. Mr K mentioned MAV too. Next I'm being referred to a London Hospital for further balance tests with machines, lights and goggles, couldn't do it there as their machines are broken. Apologised my hearing is getting worse, but said they will support me fully through that as it progresses.

Soooo to sum up today, finally feel getting somewhere. Highly recommend Professor Kanegonkar if anyone in Medway or Kent area. Maritime, Hospital. Windmill Road. Lovely team, thorough, polite, not at all belittling as second ENT and brilliant bedside manner and humerous too.
Hang in there everyone, and keep being your own health advocate. Keep a daily diary, it's helped me.  Xx Pip
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Barbara
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Barbara
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Joined: Feb 5 2011, 09:43 PM

Jan 15 2018, 10:03 PM #2

Sounds as though things are at last beginning to get sorted.  The tests in London should be thorough and give some answers.
Glad to hear you survived Christmas so well and that the physio lady is helping.

Long may it continue.

Barbara x
Got off the roundabout but still on the swings.
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DippiePippie
DippiePippie

Jan 16 2018, 07:14 PM #3

[quote="Barbara"]
Sounds as though things are at last beginning to get sorted.  The tests in London should be thorough and give some answers.
Glad to hear you survived Christmas so well and that the physio lady is helping.

Long may it continue.

Barbara x
[/quote]

Thanks Barbara.
Yes a very positive day yesterday, second ENT in August asked me to come off meds by February, but felt awful when I tried so dropped the Cinnarizine, as only started that in May, but then my Doctor overrodehis decision and upped my Serc from 8 to 16mg, which I feel is helping (along with the Fluoxetine 20mg). Interestingly the third ENT Proff K didn't mention anything about me coming off the meds? said I was a very unique case and is referring me onto see a colleague and close friend in London who he will write to.

Anyhow yes, getting there indeed, although think the referral may take a while as it has to go back via my doctor's surgery and the main Doctor walked out one lunch time and the other Doctor is on long term sick leave, just one locum trying to juggle two joined surgeries with no staff and a couple of Nurses.

Oh Barbara, I clicked on my log in and it wouldn't accept my old username yesterday,  so had to adjust it?
Thank you for all your advice and help over the past few months, what would we all do without you?!
Pip xx
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Barbara
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Barbara
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Joined: Feb 5 2011, 09:43 PM

Jan 16 2018, 07:43 PM #4

I don't log out Pip( I never have). Scared if I do I will not get back in lol. I did lock myself out once in the early set up days.
You seem to have 2 user names, dippypippie and now dippiepippie.
You are actually registered with dippypippie. I can't find the new one!

Barbara x
Got off the roundabout but still on the swings.
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DippiePippie
DippiePippie

Jan 18 2018, 09:48 AM #5

[quote="Barbara"]
I don't log out Pip( I never have). Scared if I do I will not get back in lol. I did lock myself out once in the early set up days.
You seem to have 2 user names, dippypippie and now dippiepippie.
You are actually registered with dippypippie. I can't find the new one!

Barbara x
[/quote]

Whatever was my first ID?  It was DippyPippie, I'm sure? but I hadn't logged out, I never do now, as I locked myself out once. Lol but it said I couldn't have DippyPippie as it was being used under that email address? Hence the new spelling. Lol
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Barbara
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Barbara
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Joined: Feb 5 2011, 09:43 PM

Jan 18 2018, 12:06 PM #6

Your first and only registered  ID is DippyPippie and this is clickable (ie comes up blue and opens)  DippiePippie is not a registered name (ie does not come up blue, is not clickable) so I am guessing a guest name.  Have you tried changing your password on your profile page for DippyPippie? or if you message me with a new password I could change it at this end. Very strange !!
Got off the roundabout but still on the swings.
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