pathology report it=normal chromosomes for both babies

pathology report it=normal chromosomes for both babies

futurebeauty
futurebeauty

March 20th, 2012, 9:47 pm #1

Ok, there it is. I definitely have some issues and it is not just bad embryos. The nurse left a message on my voicemail. I returned her message and left one for her asking for a copy of the report for my records. I thought about not asking for a copy but I think I will need to know the sexes for complete closure. It will be nice finding out in privacy.

I was angry and sad by the news earlier today but now I am back to looking for the future.

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smrc
smrc

March 20th, 2012, 11:34 pm #2

been tough for you to hear today, but I hope you are able to keep your positive outlook, and I'm glad you are finally getting some information so that you can do the right testing and take whatever immune or other drugs you may need next time around. I really admire your strength and resolve, and will be rooting for you. SMRC
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minniet
minniet

March 20th, 2012, 11:55 pm #3

Ok, there it is. I definitely have some issues and it is not just bad embryos. The nurse left a message on my voicemail. I returned her message and left one for her asking for a copy of the report for my records. I thought about not asking for a copy but I think I will need to know the sexes for complete closure. It will be nice finding out in privacy.

I was angry and sad by the news earlier today but now I am back to looking for the future.

FB
Futurebeauty, I really relate to what you are going through. First, you are doing exactly what you should be doing now, you took time to grieve, you are taking care of yourself (so important), and also, you are gathering information.

I went through many OE, then DE which failed fresh and frozen. It was a heartbreaking time because a close friend of mine donated and subsequently was injured from the retrieval, so we all hoped it would work out.

I took a lot of time to grieve and take care of other things in my life. I also saw several different Drs. who were highly regarded in different areas. I saw a uterine specialist and he had me get a fibroid out. He fought me, however, in examining clotting and other issues more carefully. So I saw a Reproductive Immunologist who all my friends had had success with.

When the thrombophilia and MTHR came back, I was really sad for a while.

I always got pregnant with my OE (we have been at this for 8 years) and everyone just blamed my eggs, despite making great embies. Seeing those results made me feel the losses again. (I also has a miscarriage after heartbeat, and the baby tested as normal, multiple chemicals).

Keep the faith, keep looking at the other factors than egg and donor quality, don't accept the answers if they are not complete.

We are now hoping our brand new cycle will work, but so many years of heart ache. I would like to say the Drs. simply did not have the knowledge, but I asked and asked about this and they ignored me or fought me on it.

Sending you big hugs. You are doing everything right now and good things will come to you.
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futurebeauty
futurebeauty

March 21st, 2012, 12:35 am #4

been tough for you to hear today, but I hope you are able to keep your positive outlook, and I'm glad you are finally getting some information so that you can do the right testing and take whatever immune or other drugs you may need next time around. I really admire your strength and resolve, and will be rooting for you. SMRC
I was angry at first and could not understand my feelings. Did I want to hear there was a chromosomal problem?? I don't think so but this really confirms that something about me is not working.

I am also angry that the docs just assume that it was a chromosomal error w/ each loss. I have lost 7 babies over the years w/ fortunately 2 live children. The pain and loss of our financial security (40-50k over the past 3 yrs) due to the cost of IF is overwhelming. We have no money left. We will have to use our 401K and I am going to have to beg and plead w/ DH if we have to do another fresh cycle to use this money.

Why did I not meet this doc that was suppose to do our NT scan but ended up finding fetal demise earlier?? He immediately said, "you need to be tested for immune/antiphospholipid issues". I could have saved myself and family years of heartache and may have been able to complete our family without DE. In fact, I did test negative for it 3 yrs ago but this doc says that hormones can wax/wane and I could still be positive.

So my resolve is very fragile but I have to move forward and not get caught up in all of this as I will be very angry and pissed and I will never achieve our family building w/ all of this in my head. So I will box it up and put it away as much as I can and continue on b/c what else can I do. The babies are gone.

Thanks for your support SMRC and I will be rooting you on as well in your next cycle.

(((Hugs)))

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Joined: November 27th, 2011, 4:22 pm

March 21st, 2012, 12:43 am #5

Ok, there it is. I definitely have some issues and it is not just bad embryos. The nurse left a message on my voicemail. I returned her message and left one for her asking for a copy of the report for my records. I thought about not asking for a copy but I think I will need to know the sexes for complete closure. It will be nice finding out in privacy.

I was angry and sad by the news earlier today but now I am back to looking for the future.

FB
I've never gone through this, but I've always assumed my miscarriage was the result of a chromosomal problem. In some very weird way, there's comfort in that, you know? Finding out that it's not chromosomal just opens the doors way too wide to all sorts of other possibilities.. as you know.

As hard as it is, I'm glad you now have the information and can get the closure you need. I hate that you've had to go through SO much to get to this point, but I believe something good WILL come of it. I'll be thinking of you as you take the next steps.

((Hugs))
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futurebeauty
futurebeauty

March 21st, 2012, 12:44 am #6

Futurebeauty, I really relate to what you are going through. First, you are doing exactly what you should be doing now, you took time to grieve, you are taking care of yourself (so important), and also, you are gathering information.

I went through many OE, then DE which failed fresh and frozen. It was a heartbreaking time because a close friend of mine donated and subsequently was injured from the retrieval, so we all hoped it would work out.

I took a lot of time to grieve and take care of other things in my life. I also saw several different Drs. who were highly regarded in different areas. I saw a uterine specialist and he had me get a fibroid out. He fought me, however, in examining clotting and other issues more carefully. So I saw a Reproductive Immunologist who all my friends had had success with.

When the thrombophilia and MTHR came back, I was really sad for a while.

I always got pregnant with my OE (we have been at this for 8 years) and everyone just blamed my eggs, despite making great embies. Seeing those results made me feel the losses again. (I also has a miscarriage after heartbeat, and the baby tested as normal, multiple chemicals).

Keep the faith, keep looking at the other factors than egg and donor quality, don't accept the answers if they are not complete.

We are now hoping our brand new cycle will work, but so many years of heart ache. I would like to say the Drs. simply did not have the knowledge, but I asked and asked about this and they ignored me or fought me on it.

Sending you big hugs. You are doing everything right now and good things will come to you.
and I am so sorry that you have been going through loss after loss for 8 yrs. It just plain sucks that most doctors only hear horse hoofprints instead of zebras. We need more zebra doctors!!!!! It is too much suffering for one soul to bear.

I so hope that your upcoming cycle will be successful and that this nightmare journey will be over for you and your DH. What treatment plan are you on??? I do not think we have an RI in my town. My Dr Beers book just came in today and I hope to open it tonight before bed.

Hugs,

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Joined: December 8th, 2006, 6:35 am

March 21st, 2012, 1:09 am #7

I know that there are good RIs who will run the key tests on you, perhaps distantly, and give you a protocol, even for use with another doctor.

The key things were to have a diagnostic hysteroscopy which turned out to be the fibroid and a septum removal, then we had the Chicago lab (SIRM uses and my Dr., who used be at SIRM, and now has his own clinic -- Acacio Fertility in Ca) draw for thrombopilia and a series of immune tests. I have Factor V, VIII, and MTHR, NK Cells (and I am hashimotos thyroid). The treatment is heparin twice a day, baby aspirin, prescription folic acid and intralipids infusion therapy before transfer and after confirmed pregnancy. I am also on viagra suppositories, cause the surgery made it harder for me to get a good lining (nice, that was one thing I had going for me).

It's not fun doing so much but it's not really painful, more just a juggling game with the schedule.

Don't get scared by the book, the treatments are not hard to do. You just need one doc to tell you what to do. If you do not have a local one, I'll bet you can get treatment long distance.
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Joined: December 8th, 2006, 6:35 am

March 21st, 2012, 2:14 am #8

I forgot to mention - dexamethasone for several weeks before transfer --
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Ariadne
Ariadne

March 21st, 2012, 2:35 am #9

Ok, there it is. I definitely have some issues and it is not just bad embryos. The nurse left a message on my voicemail. I returned her message and left one for her asking for a copy of the report for my records. I thought about not asking for a copy but I think I will need to know the sexes for complete closure. It will be nice finding out in privacy.

I was angry and sad by the news earlier today but now I am back to looking for the future.

FB
I'm so very sorry. What a devastating thing to go through.

I became a Beer patient after 3 failed DE cycles & I had my 1st success with them my 1st cycle, on a FET. I would strongly encourage you to consult there, with Dr. Stricker in particular. They do not do ivf cycles, so they handle only your immune treatment.

There are REs who do both. I believe Minniet goes to a good one. I am biased, but I would consult with the Beer Center no matter what, just so you can compare the testing & treatment recommended. They will be the most comprehensive out there.

Other consult suggestions would be Minniet's RE & Dr. Karen Pace.

It is a difficult road to navigate, but a necessary one for a small % of women. It certainly appears you are in that group.

Regardless of who you go with, stay on top of your testing & treatment, & actively participate. Even with the best, you have to advocate for yourself. I could go on & on about this, as I had so many problems along the way, & a few even with the Beer Center, but that advice sums it up. Stay on top of things & follow your instincts. Period.

I wish you didn't have to go through this. I'm truly sorry, but I feel you will soon succeed, with your perseverance.

Have you found the Yahoo Immune Group board yet? It is not nearly as user-friendly as the network 54 boards, but it has a wealth of information & that is where you will find the women in the thick of the RI stuff. Many are still ttc with their own eggs, but it doesn't matter. Immune issues are immune issues.

If you haven't already, I would suggest doing the dna fragmentation test for your dh, just to make sure you don't have multiple things going on. Also karyotyping, although with other living children, this is much, much less likely as issue. Same with dna fragmentation, but for less than a grand, it's worth ticking off the list, IMHO.
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futurebeauty
futurebeauty

March 21st, 2012, 3:24 am #10

I've never gone through this, but I've always assumed my miscarriage was the result of a chromosomal problem. In some very weird way, there's comfort in that, you know? Finding out that it's not chromosomal just opens the doors way too wide to all sorts of other possibilities.. as you know.

As hard as it is, I'm glad you now have the information and can get the closure you need. I hate that you've had to go through SO much to get to this point, but I believe something good WILL come of it. I'll be thinking of you as you take the next steps.

((Hugs))
as I don't want to be stuck in anger and coulda/woulda/shoulda mentality b/c it will not bring back the babies. I have to keep striving forward and losing weight to feel better about myself. It is not what happens to you but how you react to it that is more important. Isn't that the saying for positive living???

Thank you for your support Leigh as it is nice to read posts from others when things look gloomy.

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