CL, I am thinking of you.

CL, I am thinking of you.

Violet
Violet

May 9th, 2012, 12:25 pm #1

I hope you are taking care of yourself as much as you can right now.
Sending prayers and hugs.
Violet
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Joined: July 25th, 2011, 4:15 pm

May 9th, 2012, 2:44 pm #2

nt
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Joined: July 4th, 2011, 3:21 am

May 9th, 2012, 5:54 pm #3

I hope you are taking care of yourself as much as you can right now.
Sending prayers and hugs.
Violet
Thanks
Last edited by CrazyLady42 on May 11th, 2012, 12:24 am, edited 1 time in total.
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BlessedThistle
BlessedThistle

May 9th, 2012, 6:13 pm #4

There is one mutation that apparently is very common and some doctors don't think (or did not when I was tested) is significant. I have it myself, and the hematologist did not think it needed to be treated.

Re considering malpractice, may I share my experience? There was a doctor whose carelessness may well have led to my children's early arrivals at 25 weeks, four month NICU stays with untold suffering, heart surgery and lingering cardio issues for a yr for my daughter, MRSA for my son, loss of my job, a quarantine that had to continue 21 months, and asthma that will likely follow both little ones for some years. No one will take the case because it is speculative that her failure to order a vaginal ultrasound caused me to miss out on a possible emergency cerclage and a better outcome for my children. Not to be discouraging but please do not pin much hope on a favorable outcome to any attempt to secure an attorney for litigation efforts.

I hope you are able to move forward soon armed with a battle plan for a successful cycle...so sorry the little peanut did not make it this time.
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Joined: July 4th, 2011, 3:21 am

May 9th, 2012, 7:12 pm #5

Thanks
Last edited by CrazyLady42 on May 11th, 2012, 12:25 am, edited 1 time in total.
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Joined: March 31st, 2008, 2:24 pm

May 9th, 2012, 7:26 pm #6

Those are the exact 2 mutations I have and they are considered to be the less significant ones. I have not been treated for it as both RE's didn't see a need to.
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thesameboat
thesameboat

May 9th, 2012, 8:32 pm #7

Thanks
and I do need heparin and aspirin when cycling.

CL, I am so sorry. I wish you the best.
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Joined: July 4th, 2011, 3:21 am

May 9th, 2012, 8:49 pm #8

Those are the exact 2 mutations I have and they are considered to be the less significant ones. I have not been treated for it as both RE's didn't see a need to.
Re: Both C677T and A1298C
Last edited by CrazyLady42 on May 11th, 2012, 12:25 am, edited 1 time in total.
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Mrs. M
Mrs. M

May 9th, 2012, 9:24 pm #9

Thanks
I can't believe your clinic never shared results with you and never addressed implications and treatment. It sound like you now have someone who is more attentive which is a very good thing. I would at a minimum contact the risk management dept at the clinic and share your dissatisfaction. If you can afford and attorney, I say go for it. ((hugs))
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Joined: March 25th, 2008, 8:46 pm

May 9th, 2012, 10:00 pm #10

Thanks
"did that doctor's failure to provide a proper standard of care lead to my outcome?" If it cannot be proved rather than speculated on, I was told it is very hard to win a case. Which really sucks, because I will forever wonder if all my children's pain/trauma and their decidedly inauspicious beginnings could have been circumvented (it was too late for an emergency cerclage by the time I was diagnosed 8 days later but apparently not at the time I complained that it felt like my cervix was suddenly dropping out) and you will forever wonder if your peanut might have made it had you taken heparin/baby aspirin/folgard.

I satisfied myself to some extent by warning other women with scathing reviews of this doctor online but then found that on at least one site (vitals.com), the physician can "manage patient feedback" aka delete your feedback and then block you from posting! That doctors should be able to practice slipshod medicine and get away with it is infuriating, I agree wholeheartedly.
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