I asked for their stance re: “Shingrix”, the new vaccine for Shingles - here’s the response I received today from Anna, the Executive Director of the HCL Foundation:
“Thank you for reaching out to the Hairy Cell Leukemia Foundation.
You had asked about the new Shingrix vaccine. You are correct that the recently-released Shingrix is not a live vaccine and the FDA does not restrict its use in patients with leukemia or lymphoma. Therefore Shingrix is being prescribed for patients with
leukemia or lymphoma.
As you know, the older Zostavax vaccine is an altered (attenuated) live virus. It is not recommend for individuals with leukemia or lymphoma, or who have a history of leukemia or lymphoma.”
Who knows whether we’re really more susceptible to getting shingles than a person without HCL but it’s nice to have a choice.
Hi Helen, my onco said it was ok to get the Shingrix vaccine. I got the first shot about 4 weeks ago and will get the second next month.
So far so good.