Response from HCL Foundation re: New Shingles Vaccine....

Helen99
Helen99

April 12th, 2018, 6:30 pm #1

I asked for their stance re: “Shingrix”, the new vaccine for Shingles - here’s the response I received today from Anna, the Executive Director of the HCL Foundation:

“Thank you for reaching out to the Hairy Cell Leukemia Foundation.

You had asked about the new Shingrix vaccine. You are correct that the recently-released Shingrix is not a live vaccine and the FDA does not restrict its use in patients with leukemia or lymphoma. Therefore Shingrix is being prescribed for patients with
leukemia or lymphoma.

As you know, the older Zostavax vaccine is an altered (attenuated) live virus. It is not recommend for individuals with leukemia or lymphoma, or who have a history of leukemia or lymphoma.”

Who knows whether we’re really more susceptible to getting shingles than a person without HCL but it’s nice to have a choice.

Helen
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Joined: November 29th, 2015, 6:41 pm

Shingirx

April 15th, 2018, 1:04 am #2

Hi Helen, my onco said it was ok to get the Shingrix vaccine. I got the first shot about 4 weeks ago and will get the second next month.

So far so good.
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Joined: March 15th, 2009, 11:18 pm

July 16th, 2018, 9:34 pm #3

HI Helen, my doc said to get it, I did
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Joined: March 30th, 2003, 5:17 pm

July 17th, 2018, 10:53 am #4

I've already been vaccinated--the old fashion way. I contracted shingles twice; each time about 1-2 years after chemo. I had chemo in 2001 and 2016.
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Joined: March 15th, 2009, 11:18 pm

July 19th, 2018, 2:21 am #5

sorry i gave incorrect information. when i saw about second shot , i wondered, i got the shingles vaccine at end of 2017, i checked with pharmacist at lunch time, i received the old one. She said there is a waiting list until the fall. I will check with my doctor when i get bone marrow results. thanks for info
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Joined: January 24th, 2017, 12:12 am

August 8th, 2018, 1:42 am #6

I have my script to get the first of the two Shingrix shots.  There is a shortage and it’s hit or miss at the pharmacies.  But, I’ve been trying to stay on top of it - call several of them every week to see if they received their allotment.  FYI, for those of us under age 65, the cost is about $130/shot ($260 total) and my insurance will cover it but only if it’s administered by a pharmacy - no coverage if done at the doctor’s office.
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