JUST POSTED ON YOUTUBE ' LIVING WITH HAIRY CELL LEUKEMIA'

Joined: January 16th, 2018, 8:38 pm

April 11th, 2018, 10:27 pm #1

Last edited by BradZar57 on April 11th, 2018, 10:34 pm, edited 1 time in total.
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Rob
Rob

In my case it wasn't worth watching...

April 12th, 2018, 2:43 am #2

...made me have anxiety. It always happens when I get a broad view of HCL vs. my own personal case. The stats are real but the threat of fitting into them is false. 3-10% secondary cancers? shingles? How many of us have gotten shingles that relate to HCL when old farts get shingles and they don't have HCL--but they get it too?

Also, the doc read off my screen? It wasn't much of a revelation and I can read faster than the doc read. I was flipping though the thing in about 5 minutes of a 12 minute--or so--presentation yaaaaawn. I truly get more from this site than that doc pawned off, and he makes a lot more money than this site does??? Just sayin.

My opinion of course. OH! And when do HCL folks get the shingles? When their counts drop to zero or 5 years later or when--no mention of that. If you disagree that's fine cuz we're all different.

Nice to know how long you had back in 1983. I didn't know that one. Also the picture of the doc who pinned the name or made the discovery I didn't have that one in my collection.

I was hoping the doc knew the stats for people who have HCL and ride motorcycles. -- Rob
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Jim weathers
Jim weathers

April 25th, 2018, 2:15 am #3

Just checking in
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Joined: April 3rd, 2013, 6:25 pm

April 30th, 2018, 8:11 pm #4

just checked in good to see it up and running
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Joined: March 30th, 2003, 5:17 pm

April 30th, 2018, 9:05 pm #5

Yep we're still kickin
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