HI, addressing your points:
The web site is run and operated by an associate member of the association, but it is not it any way controlled by such, or paid for by such, nor will it ever be.
I have had twelve months were my life has been turned upside down and I have needed to place all of this on hold.
The problem is that I have about 60 people now waiting for web pages to be made for their loved ones, and there is only myself that can do the work.
If you have any more questions my direct email can be found on the contact page.
Details for the association will be placed on the Assciation page as soon as possible.