Amputation

01armed
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01armed
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Joined: 2:02 PM - Feb 03, 2018

2:14 PM - Feb 03, 2018 #1

Well, I just want to say after 6 1/2 years of seeing only babies sites with BPI I am glad to finally have this hit my phone.
I just read Andy's amputation story. I've been thinking about that since I have no feeling below mid bicep.
I went to Mayo Clinic for my 'fix'. The Doctor told me I would be SO HAPPY when I could lift my arm...he and I have a different sense of happy, I guess.
The only thing this arm does is get cut, wiegh as much as a baby and gets in my way. My question is; How do I convince a doctor that I want it gone because it is a pain in my tail? They seem to think One day maybe it will become viable again, it won't. I'm 63 this year and I've dealt with this for 6.5 years. The pain from the nerve damage is smoothed with Tramadol and Gavepenten. It's still enough some days to make me scream.
My story is at http://bikerdown.blogspot.com
Thanks for listening, ill be back real soon.
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onepaw
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11:50 PM - Feb 03, 2018 #2

01armed wrote: Well, I just want to say after 6 1/2 years of seeing only babies sites with BPI I am glad to finally have this hit my phone.
I just read Andy's amputation story. I've been thinking about that since I have no feeling below mid bicep.
I went to Mayo Clinic for my 'fix'. The Doctor told me I would be SO HAPPY when I could lift my arm...he and I have a different sense of happy, I guess.
The only thing this arm does is get cut, wiegh as much as a baby and gets in my way. My question is; How do I convince a doctor that I want it gone because it is a pain in my tail? They seem to think One day maybe it will become viable again, it won't. I'm 63 this year and I've dealt with this for 6.5 years. The pain from the nerve damage is smoothed with Tramadol and Gavepenten.  It's still enough some days to make me scream.
My story is at http://bikerdown.blogspot.com
Thanks for listening, ill be back real soon.
Hi 01 Armed: Why do they think you are going to recover use of that arm after 6.5yrs? Is your shoulder subluxed? I've spent some time at Mayo and they always told me that I could amputate if I wanted but that it would not help with neuropathic pain, maybe make it worse. I admit, this arm somedays feels more like a swinging beef quarter than the scrawny  bean pole it is. Onepaw
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01armed
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01armed
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11:56 PM - Feb 03, 2018 #3

They think it because it makes them, and they suppose me, feel better. I have the same feeling about the arm, a swinging baby that just gets in trouble, cuts and bruises, without telling me!
I was told it wouldn't help the pain and might make it worse, and so?, will that hurt them? The pain is there all day every day and I just adjust to it. My old man use to say, you can laugh or you can cry but nobody wants to hear your crying.
So, life is a joke and I laugh as much as I can.
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01armed
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11:58 PM - Feb 03, 2018 #4

Oh yeah, the shoulder is subluxed. That's a minor thing though.
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Dave m
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7:27 PM - Feb 06, 2018 #5

01armed wrote: Well, I just want to say after 6 1/2 years of seeing only babies sites with BPI I am glad to finally have this hit my phone.
I just read Andy's amputation story. I've been thinking about that since I have no feeling below mid bicep.
I went to Mayo Clinic for my 'fix'. The Doctor told me I would be SO HAPPY when I could lift my arm...he and I have a different sense of happy, I guess.
The only thing this arm does is get cut, wiegh as much as a baby and gets in my way. My question is; How do I convince a doctor that I want it gone because it is a pain in my tail? They seem to think One day maybe it will become viable again, it won't. I'm 63 this year and I've dealt with this for 6.5 years. The pain from the nerve damage is smoothed with Tramadol and Gavepenten.  It's still enough some days to make me scream.
My story is at http://bikerdown.blogspot.com
Thanks for listening, ill be back real soon.
Hi 01Armed sorry to hear of your bike smash but welcome to here. I read on your blog what happened that is bad I think some of us are lucky to be waking and talking doh! I can't help with your amputation question as luckily I got good enough recovery to not consider that. Having said that there are some people who frequent these boards who have opted for amputation and as far as I know none have regretted their decision. Good luck with your decision,

Dave
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01armed
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7:37 PM - Feb 06, 2018 #6

Dave m wrote:
01armed wrote: Well, I just want to say after 6 1/2 years of seeing only babies sites with BPI I am glad to finally have this hit my phone.
I just read Andy's amputation story. I've been thinking about that since I have no feeling below mid bicep.
I went to Mayo Clinic for my 'fix'. The Doctor told me I would be SO HAPPY when I could lift my arm...he and I have a different sense of happy, I guess.
The only thing this arm does is get cut, wiegh as much as a baby and gets in my way. My question is; How do I convince a doctor that I want it gone because it is a pain in my tail? They seem to think One day maybe it will become viable again, it won't. I'm 63 this year and I've dealt with this for 6.5 years. The pain from the nerve damage is smoothed with Tramadol and Gavepenten.  It's still enough some days to make me scream.
My story is at http://bikerdown.blogspot.com
Thanks for listening, ill be back real soon.
Hi 01Armed sorry to hear of your bike smash but welcome to here. I read on your blog what happened that is bad I think some of us are lucky to be waking and talking doh! I can't help with your amputation question as luckily I got good enough recovery to not consider that. Having said that there are some people who frequent these boards who have opted for amputation and as far as I know none have regretted their decision. Good luck with your decision,

Dave
Yeah, it was a hard one. More for my wife than me, I got pills! But it definitely changed my life.
I have been tossing the amputation around for a couple of years.. especially when I'm working on something and cut the arm not realizing I am bleeding out!
It's a bit difficult to talk a doctor into it. 'Well, you know with scientific gains one day they may...' I'm like yeah, I'm 63, I don't have time for science to catch up. So, we go in circles. Fun Days!
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LiveRound
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4:47 PM - Feb 23, 2018 #7

Hi 01Armed,   I'm in a very similar situation, 62 ys old, c5-c8 avulsed  accident was in 2009.   3 years ago I decided to go for a DREZ operation, and I'm now able to do without the Pregabalin and Oxycontine tablets,  I sill take codeine and paraceptaol but thats all.  I've had a huge reduction in pain levels,  might be worth thinking about for yourself

garry
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chrisjt
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10:26 PM - Mar 11, 2018 #8

LiveRound wrote: Hi 01Armed,   I'm in a very similar situation, 62 ys old, c5-c8 avulsed  accident was in 2009.   3 years ago I decided to go for a DREZ operation, and I'm now able to do without the Pregabalin and Oxycontine tablets,  I sill take codeine and paraceptaol but thats all.  I've had a huge reduction in pain levels,  might be worth thinking about for yourself

garry
I had a Drez in December a lot of the pain went straight away what was left as started to get a bit uncomfortable again
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LiveRound
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4:10 PM - Mar 12, 2018 #9

chrisjt wrote:
LiveRound wrote: Hi 01Armed,   I'm in a very similar situation, 62 ys old, c5-c8 avulsed  accident was in 2009.   3 years ago I decided to go for a DREZ operation, and I'm now able to do without the Pregabalin and Oxycontine tablets,  I sill take codeine and paraceptaol but thats all.  I've had a huge reduction in pain levels,  might be worth thinking about for yourself

garry
I had a Drez in December a lot of the pain went straight away what was left as started to get a bit uncomfortable again
I know what you mean, I'm similar, but still nowhere near as bad as before the operation. I don't hey any of the severe stabbing/crushing pain. But I do still have a strong burning sensation on my skin, and constant throbbing like I've been hit with a bat. But like I say, glad to have had the drez operation.

Garry
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johnbayliff
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10:48 PM - Sep 30, 2018 #10

hi guys just been reading about amutees and different opinions and im at a point of thinking about having my arm of big decision for me as gotta go through all that psychological crap again ,im not sure in my mind it'll get rid of the pain just not sure but i do think a lot of the pain has come from a nerve transfer op i had from my neck to my elbow ,was going to have 2 ops the other on my shoulder but they told me my shoulder was to stiff .i have a full avulsion of the bp i take 1 pregablin a day and thats 1 to much I'm always wondering if i had not had the op would the pain be has bad some days its that bad instead of crying i have to laugh, it comes in spasms around my elbow where i had the op so does make me wonder most of the time, i do a lot of sport so that takes my mind of the pain and my work also just a question what is a drez operation thanks john. 
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