Lauren - a question for you on the IVF w/ own eggs post (m/c ment)

Lauren - a question for you on the IVF w/ own eggs post (m/c ment)

Joined: September 13th, 2007, 4:40 am

February 23rd, 2011, 4:42 pm #1

I was reading your post about going straight to DE and I'm wondering if your doctors have done anything to look into your early losses (sorry if you've posted this and I've missed it). I ask because, like you, I had many losses and my RE didn't think it made sense to do IVF with my own eggs as I could get pregnant without it. However, I was much older than you, and one of my losses was late term and due to a chromosomal problem so we knew it was an egg issue. Have any tests been done on you to look for reasons for your miscarriages? Just wondering as you say you are very young. I'm sorry you are going through this, no one should have to. By the way, I went straight to DE with my own eggs.
Last edited by Andi777 on February 23rd, 2011, 4:43 pm, edited 1 time in total.
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Lauren
Lauren

February 23rd, 2011, 5:10 pm #2

At this point nothing.The first few were before we ever even saw an RE, and this was before I knew about getting betas. I just knew you tested at home. I made it only 5-6 weeks with each

The fourth we were on a break from TTC with Med Assistance and I could have asked for a beta but I knew I was pregnant, I had a progesterone script and figured a beta could tell me nothing new.

It never entered into my head until this year to think that there could be testing. Three RE's all said "there is nothing you can do if yo do miscarry" so I assumed there were never answers for WHY people miscarry. It was always explained as "just bad luck"

This current RE is very dismissive. They dont count, not "real pregnancy" just "chemicals, no heartbeat so its not the same kind of loss". No attempt to test and refuses immune testing

Fragile X came back normal this week. Research is telling me to obviously leave this RE but all the RE's I've seen in Dallas had very similar statements and and views on "my chemicals"
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Joined: September 26th, 2008, 9:06 pm

February 23rd, 2011, 5:29 pm #3

I was reading your post about going straight to DE and I'm wondering if your doctors have done anything to look into your early losses (sorry if you've posted this and I've missed it). I ask because, like you, I had many losses and my RE didn't think it made sense to do IVF with my own eggs as I could get pregnant without it. However, I was much older than you, and one of my losses was late term and due to a chromosomal problem so we knew it was an egg issue. Have any tests been done on you to look for reasons for your miscarriages? Just wondering as you say you are very young. I'm sorry you are going through this, no one should have to. By the way, I went straight to DE with my own eggs.
Is it possible for you to find a reproductive immunologist near you who would test you independently of your RE? I know a lot of REs seem to feel threatened by immune treatments but maybe it would be possible to do it on your own. Reading your post seems like something straight out of a chapter of 'Is your body baby friendly?' (a good book for laypeople to get info. about immune testing and treatments --- I cried when I read it, as it seemed to be about all of my family's medical history)

I know. I know! HE'S the doctor, but I still don't understand why they seem to automatically jump at the idea that it's the egg that's faulty.

Best wishes. I hope you find success soon.
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Joined: September 13th, 2007, 4:40 am

February 23rd, 2011, 5:54 pm #4

DE is wonderful, but if there's something else going on it could be a problem with DE as well (like a progesterone issue - or blood clotting, or immune, etc. I had a friend who had 4 m/c, all told it was normal, before they realized she needed progesterone support. Next month it was a success).

How old are you?

Start by reading the book recommended by the sameboat, also:
the fertility cure by randine lewis is a good book.

I'd do a little research with an RE who is supportive. Egg quality is only one reason you could m/c.

Also that RE sounds a little insensitive.

Good Luck to you.
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Joined: September 13th, 2007, 4:40 am

February 23rd, 2011, 5:56 pm #5

At this point nothing.The first few were before we ever even saw an RE, and this was before I knew about getting betas. I just knew you tested at home. I made it only 5-6 weeks with each

The fourth we were on a break from TTC with Med Assistance and I could have asked for a beta but I knew I was pregnant, I had a progesterone script and figured a beta could tell me nothing new.

It never entered into my head until this year to think that there could be testing. Three RE's all said "there is nothing you can do if yo do miscarry" so I assumed there were never answers for WHY people miscarry. It was always explained as "just bad luck"

This current RE is very dismissive. They dont count, not "real pregnancy" just "chemicals, no heartbeat so its not the same kind of loss". No attempt to test and refuses immune testing

Fragile X came back normal this week. Research is telling me to obviously leave this RE but all the RE's I've seen in Dallas had very similar statements and and views on "my chemicals"
They can't test with the early m/c...so he's right on that. But they could look for other reasons why the egg would fertilize and not take. Maybe others have recommendations.
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Joined: November 20th, 2006, 6:03 pm

February 23rd, 2011, 6:03 pm #6

I was reading your post about going straight to DE and I'm wondering if your doctors have done anything to look into your early losses (sorry if you've posted this and I've missed it). I ask because, like you, I had many losses and my RE didn't think it made sense to do IVF with my own eggs as I could get pregnant without it. However, I was much older than you, and one of my losses was late term and due to a chromosomal problem so we knew it was an egg issue. Have any tests been done on you to look for reasons for your miscarriages? Just wondering as you say you are very young. I'm sorry you are going through this, no one should have to. By the way, I went straight to DE with my own eggs.
about moving right to DE. Nothing wrong with doing so - but as some of us have learned the hard (and expensive) way, DE is not always the magic bullet if there are other things going on . In my case we found one thing at a time and it turned out to be a "little bit of this and a little bit of that" that kept me mc'ing - even with donor eggs. Definitely get a recurrent mc panel at a minimum, that tests for basic blood clotting issues and basic immune stuff, even if you don't do the full immune workup (which I'd still recommend - immune stuff DOES seem tied into high FSH at a young age/ POF just from my years on the high FSH board and here). The fact you're getting pg easily makes my alarm bells go off that it MAY not be solely an egg quality issue (though with your high FSH that's certainly part of it). I'd investigate further before dropping a ton of cash on DE IVF, then if you find nothing else to treat, go for it when you are ready .

Good luck to you! Best,
Kenny
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Leigh888
Leigh888

February 23rd, 2011, 7:07 pm #7

I was reading your post about going straight to DE and I'm wondering if your doctors have done anything to look into your early losses (sorry if you've posted this and I've missed it). I ask because, like you, I had many losses and my RE didn't think it made sense to do IVF with my own eggs as I could get pregnant without it. However, I was much older than you, and one of my losses was late term and due to a chromosomal problem so we knew it was an egg issue. Have any tests been done on you to look for reasons for your miscarriages? Just wondering as you say you are very young. I'm sorry you are going through this, no one should have to. By the way, I went straight to DE with my own eggs.
that after two or three consecutive m/c (whether chemical pregnancies or not), RPL (repeat loss testing) is recommended. I don't think you would be at all out of line to insist that your RE run the tests.

Good luck to you!
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Anonymous
Anonymous

February 23rd, 2011, 7:56 pm #8

I was reading your post about going straight to DE and I'm wondering if your doctors have done anything to look into your early losses (sorry if you've posted this and I've missed it). I ask because, like you, I had many losses and my RE didn't think it made sense to do IVF with my own eggs as I could get pregnant without it. However, I was much older than you, and one of my losses was late term and due to a chromosomal problem so we knew it was an egg issue. Have any tests been done on you to look for reasons for your miscarriages? Just wondering as you say you are very young. I'm sorry you are going through this, no one should have to. By the way, I went straight to DE with my own eggs.
I am a "veteran" of the regular high FSH board and even responded to you several times over there. I come to this board from time to time because DE has been an option I have considered heavily for myself. I have to say that I am so disappointed (not sure that is the right word??) to see you here.

I think DE is an AMAZING, sanity-saving, hope-restoring option. I've been through the initial work-ups for DE and have consulted with several clinics. But, as an OE IVF veteran, I think you're jumping the gun here. You are so young still. And you have proven you can get pregnant. I know that on the other board you posted averaging a pregnancy per year and you were down about that. But that is actually VERY GOOD! I know it doesn't feel good in any way because of the losses that have come with those pregnancies. But YOU CAN GET PREGNANT!

The issue to be solved here is how to KEEP you pregnant.

You need to get yourself more consultation(s) with specialists. I actually think it's ridiculous for anyone to suggest IVF given that you can get pregnant on your own. These REs mainly make money by doing IVF so it's no wonder that it's their go-to answer.

You may want to post on the pregnancy boardhttp://www.network54.com/Forum/264844/
There are women on there who have suffered pregnancy losses only to go on to successful pregnancies.

One young lady has not yet found succcess but has made her way from South Dakota to a specialist in Chicago to try and solve her miscarriage mystery. http://www.network54.com/Forum/264844/m ... ment...%29

If DE is absolutely what you want to do that is perfectly fine and you certainly don't need anyone's reassurance/approval from a board to proceed. But just trying to bring to light for you that you haven't solved your mystery yet and so jumping to DE may end up being "foolish" for reasons that have nothing to do with figuring out if DE is right or not. Like Kenny posted, you may be having issues that DE can't and will never overcome.

As a first step you should be asking your OB - forget the RE - to do a thrombophilia panel. This will look at antiphospholipid antibodies, lupus anticoagulant, and anticardiolipin antibodies, Antiphosphotidylserine, PAI-1 levels and activity, Antithrombin III, Prothrombin II mutation, Protein C activity, Protein S activity, Factor V Leiden, MTHFR/homocysteine level.
You should also ask that karyotyping be run on both you and DH. None of this has to even be run as "infertility" diagnosis code. Given your history, your OB should be ordering this under diagnosis code V629.9 - habitual aborter without a current pregnancy. (Sorry, I know that the term aborter sounds horrible but that is the technical term).

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H40+
H40+

February 23rd, 2011, 9:28 pm #9

I was reading your post about going straight to DE and I'm wondering if your doctors have done anything to look into your early losses (sorry if you've posted this and I've missed it). I ask because, like you, I had many losses and my RE didn't think it made sense to do IVF with my own eggs as I could get pregnant without it. However, I was much older than you, and one of my losses was late term and due to a chromosomal problem so we knew it was an egg issue. Have any tests been done on you to look for reasons for your miscarriages? Just wondering as you say you are very young. I'm sorry you are going through this, no one should have to. By the way, I went straight to DE with my own eggs.
It looks like you're trying to rationalize that you'd rather go ahead to DE without messing with OE IVF, because I notice you said in your initial post:

"I have crappy genetics honestly. I got relatively lucky but addiction and cancer and mental illness race through my family on both sides like wildfire. I'd feel at this point that a child from someone else genes would be getting a gift I cant give.

So rambling thoughts that I urge people to pick apart. Why is it so taboo to even think of skipping IVF with my own eggs? I am so sick of hearing "dont you want to try just once, you are so young, wont you always wonder".

What if I really don't care where or who my children come from? Is that possible??"
____________________________________________________________
It sounds like you're leaning to DE, not just because of prior miscarriages and high FSH, but also because you think there are genetic problems you carry that you don't necessarily want to pass on to your child. What a noble statement (thinking of your future child), saying "I'd feel at this point that a child from someone else genes would be getting a gift I cant give," instead of just worry about carrying on your bloodline. Do what you want, if you think you'll get a better result for you and your baby by using donor ovum, go for it. If you're wanting to give it a shot with your own genes, do that too, but don't let anyone convince you that you're weird for not caring about that.
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Joined: December 10th, 2008, 6:33 pm

February 23rd, 2011, 10:12 pm #10

At this point nothing.The first few were before we ever even saw an RE, and this was before I knew about getting betas. I just knew you tested at home. I made it only 5-6 weeks with each

The fourth we were on a break from TTC with Med Assistance and I could have asked for a beta but I knew I was pregnant, I had a progesterone script and figured a beta could tell me nothing new.

It never entered into my head until this year to think that there could be testing. Three RE's all said "there is nothing you can do if yo do miscarry" so I assumed there were never answers for WHY people miscarry. It was always explained as "just bad luck"

This current RE is very dismissive. They dont count, not "real pregnancy" just "chemicals, no heartbeat so its not the same kind of loss". No attempt to test and refuses immune testing

Fragile X came back normal this week. Research is telling me to obviously leave this RE but all the RE's I've seen in Dallas had very similar statements and and views on "my chemicals"
there are lots of reason that something could not be happening: immune issues and so forth. There are RE's who specialize in women who miscarry. I would try for this. I don't know for sure but isn't Cornell in NYC like, one of the best in finding out situations like this?
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