Dx

Dx

Joined: January 1st, 1970, 12:00 am

March 9th, 2012, 10:39 pm #1

Ds's score for the Childhood Autism Rating Scale (2nd edition) is 30, which is mild to moderate autism. He will get services. We meet with the autism itinerant in 10 days to discuss specifics.

My main concerns at this time are that the services might not be adequate. I was reading the local parents' posts on FB and several do seem to feel their kids aren't getting enough.

Labeling: I don't want him to internalize this, which is something he does a lot. My parents labeled a lot, and even when labels are positive, as mine was, it can still be harmful, IMO.

Middle school: my biggest fear. I really hope that he can improve his coping and social skills.

Also, several ppl on the team today said they think he's under a lot of stress at school, trying to hold it together. I need to find out more about this. His df is a very conformist kind of guy. I can be pretty judgmental, too, I guess. So we both need to find ways, change our attitudes and behavior, to help ds feel more comfortable and accepted.

I guess I feel kind of numb today. I was worried that they would deny services, and here we'd be with this child who is teased and excluded and doesn't fit in, and no resources to help him. I'm relieved that we don't have to fight the district for this.

I also think ds has ADHD-I, the inattentive type of ADHD. (I'm sure I had and still have it, too.) I need to try some caffeine with him on a weekend to see how he responds, but so far, I can't spike a drink for him that he likes and I accept. I don't want to start giving him soda, so I'm trying to make a tea punch that my dgm used to make. It was lemonade and tea, and the first one I made, he rejected. (At least tea is good for you, so I'd feel ok about him getting that.)

DH is skeptical about meds for ADHD. We don't even have a dx yet, but I feel sure that a consultation plus the report we received will convince most drs that he has ADHD. DH is worried about the rebound, but I thought that was mostly from Ritalin, which is short-acting. I don't want ds's growth stunted, but of course, if he needs medication to function, I want him to have it.

So, IEP is next. I'll also give the report to his play therapist and his ped. I'm not sure what else is next, so if any of you are BTDT on this, I welcome your input.

Thank you all for your support and caring. This would be infinitely harder without my cyber friends.

And if your child has unusual behaviors, I'd just respectfully suggest that you get in touch with a parent liaison from your local Autism Society and consider getting your child checked out, because the American Psychiatry Association is about to change their standards for defining Asperger's and Autism. When they do, fewer people will qualify for services. To me, that would be awful, to need services, yet fall just below the qualifying threshold. I was told that kids who have already had a dx will probably be grandfathered.




Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg

Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc

ttc since 1998
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Joined: August 21st, 2006, 3:29 pm

March 10th, 2012, 4:14 am #2

KM,

I haven't BTDT and have no words of wisdom, but hugs to you as you work to use this new information to help your DS. I know you'll do a wonderful job.

Best wishes,
Alex
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wcl
Joined: September 19th, 2006, 11:17 am

March 10th, 2012, 6:28 am #3

Ds's score for the Childhood Autism Rating Scale (2nd edition) is 30, which is mild to moderate autism. He will get services. We meet with the autism itinerant in 10 days to discuss specifics.

My main concerns at this time are that the services might not be adequate. I was reading the local parents' posts on FB and several do seem to feel their kids aren't getting enough.

Labeling: I don't want him to internalize this, which is something he does a lot. My parents labeled a lot, and even when labels are positive, as mine was, it can still be harmful, IMO.

Middle school: my biggest fear. I really hope that he can improve his coping and social skills.

Also, several ppl on the team today said they think he's under a lot of stress at school, trying to hold it together. I need to find out more about this. His df is a very conformist kind of guy. I can be pretty judgmental, too, I guess. So we both need to find ways, change our attitudes and behavior, to help ds feel more comfortable and accepted.

I guess I feel kind of numb today. I was worried that they would deny services, and here we'd be with this child who is teased and excluded and doesn't fit in, and no resources to help him. I'm relieved that we don't have to fight the district for this.

I also think ds has ADHD-I, the inattentive type of ADHD. (I'm sure I had and still have it, too.) I need to try some caffeine with him on a weekend to see how he responds, but so far, I can't spike a drink for him that he likes and I accept. I don't want to start giving him soda, so I'm trying to make a tea punch that my dgm used to make. It was lemonade and tea, and the first one I made, he rejected. (At least tea is good for you, so I'd feel ok about him getting that.)

DH is skeptical about meds for ADHD. We don't even have a dx yet, but I feel sure that a consultation plus the report we received will convince most drs that he has ADHD. DH is worried about the rebound, but I thought that was mostly from Ritalin, which is short-acting. I don't want ds's growth stunted, but of course, if he needs medication to function, I want him to have it.

So, IEP is next. I'll also give the report to his play therapist and his ped. I'm not sure what else is next, so if any of you are BTDT on this, I welcome your input.

Thank you all for your support and caring. This would be infinitely harder without my cyber friends.

And if your child has unusual behaviors, I'd just respectfully suggest that you get in touch with a parent liaison from your local Autism Society and consider getting your child checked out, because the American Psychiatry Association is about to change their standards for defining Asperger's and Autism. When they do, fewer people will qualify for services. To me, that would be awful, to need services, yet fall just below the qualifying threshold. I was told that kids who have already had a dx will probably be grandfathered.




Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg

Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc

ttc since 1998
Konni, if you'll recall, my GS is suspected of having this, too. But since he's only 5, they haven't yet offered a formal diagnosis, even though he had all the testing. I know your DS is a few years older, and things become clearer then. I believe it's good that these issues have been identified and services will be provided. If you feel they're not enough, maybe you can supplement? But anything they do for him is likely to be helpful.

My GS has been getting services since last year in preschool. We worried about labeling, too. But it's been the best thing for him. In kindergarten now, he has a learning specialist to help him with paying attention, and a psychologist working with him on social skills. He is happy at school, and I have seen a huge change in him for the better. He seems to have developed an awareness of his issues, and an internal dialogue and strategy. I guess you could call those "tools for fixing himself." My DD told me that the other day he was at the kitchen table and suddenly said "Mommy, I'm ignoring Daddy and Leah, and focusing on my coloring so I don't get distracted. Distraction is bad! When you're distracted, you may not hear what the teacher says. And you may not know what the group is doing." (My shocked DD called the teacher immediately, who was very pleased that he had taken so seriously what she had obviously said to him, applying it to a new situation, as well.) At another time, he told the psychologist "Mrs. K, I'm having trouble listening to the story because I keep looking at the gingerbread house (in the classroom)." Must have been near lunchtime! But it's the awareness of cause and effect that I'm pointing out to you, and from awareness comes change.

I wish the same for your DS, who sounds like such a bright and great kid! I have a feeling he will respond well.

wcl
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Joined: January 1st, 1970, 12:00 am

March 10th, 2012, 1:12 pm #4

KM,

I haven't BTDT and have no words of wisdom, but hugs to you as you work to use this new information to help your DS. I know you'll do a wonderful job.

Best wishes,
Alex
i appreciate your encouragement. I think my biggest challenge now is that I don't know what I don't know, on top of being stretched too thin btwn work and school. wish there were some cliffs notes for parenting now!





Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg

Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc

ttc since 1998
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Joined: January 1st, 1970, 12:00 am

March 10th, 2012, 1:16 pm #5

Konni, if you'll recall, my GS is suspected of having this, too. But since he's only 5, they haven't yet offered a formal diagnosis, even though he had all the testing. I know your DS is a few years older, and things become clearer then. I believe it's good that these issues have been identified and services will be provided. If you feel they're not enough, maybe you can supplement? But anything they do for him is likely to be helpful.

My GS has been getting services since last year in preschool. We worried about labeling, too. But it's been the best thing for him. In kindergarten now, he has a learning specialist to help him with paying attention, and a psychologist working with him on social skills. He is happy at school, and I have seen a huge change in him for the better. He seems to have developed an awareness of his issues, and an internal dialogue and strategy. I guess you could call those "tools for fixing himself." My DD told me that the other day he was at the kitchen table and suddenly said "Mommy, I'm ignoring Daddy and Leah, and focusing on my coloring so I don't get distracted. Distraction is bad! When you're distracted, you may not hear what the teacher says. And you may not know what the group is doing." (My shocked DD called the teacher immediately, who was very pleased that he had taken so seriously what she had obviously said to him, applying it to a new situation, as well.) At another time, he told the psychologist "Mrs. K, I'm having trouble listening to the story because I keep looking at the gingerbread house (in the classroom)." Must have been near lunchtime! But it's the awareness of cause and effect that I'm pointing out to you, and from awareness comes change.

I wish the same for your DS, who sounds like such a bright and great kid! I have a feeling he will respond well.

wcl
and I am sorry I didn't email about that sibling issue. my sister is so happy now and my own issues so far in the past that I rarely think of the tough times now. is your dgs taking meds? when you get a chance I'd love to know what specific things have worked best for him. I think my own main coping strategy was to sit close to the teacher, but I know this also leads to my impulsive and excessive speaking in class, too.




Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg

Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc

ttc since 1998
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Joined: July 7th, 2009, 1:19 pm

March 10th, 2012, 2:12 pm #6

Ds's score for the Childhood Autism Rating Scale (2nd edition) is 30, which is mild to moderate autism. He will get services. We meet with the autism itinerant in 10 days to discuss specifics.

My main concerns at this time are that the services might not be adequate. I was reading the local parents' posts on FB and several do seem to feel their kids aren't getting enough.

Labeling: I don't want him to internalize this, which is something he does a lot. My parents labeled a lot, and even when labels are positive, as mine was, it can still be harmful, IMO.

Middle school: my biggest fear. I really hope that he can improve his coping and social skills.

Also, several ppl on the team today said they think he's under a lot of stress at school, trying to hold it together. I need to find out more about this. His df is a very conformist kind of guy. I can be pretty judgmental, too, I guess. So we both need to find ways, change our attitudes and behavior, to help ds feel more comfortable and accepted.

I guess I feel kind of numb today. I was worried that they would deny services, and here we'd be with this child who is teased and excluded and doesn't fit in, and no resources to help him. I'm relieved that we don't have to fight the district for this.

I also think ds has ADHD-I, the inattentive type of ADHD. (I'm sure I had and still have it, too.) I need to try some caffeine with him on a weekend to see how he responds, but so far, I can't spike a drink for him that he likes and I accept. I don't want to start giving him soda, so I'm trying to make a tea punch that my dgm used to make. It was lemonade and tea, and the first one I made, he rejected. (At least tea is good for you, so I'd feel ok about him getting that.)

DH is skeptical about meds for ADHD. We don't even have a dx yet, but I feel sure that a consultation plus the report we received will convince most drs that he has ADHD. DH is worried about the rebound, but I thought that was mostly from Ritalin, which is short-acting. I don't want ds's growth stunted, but of course, if he needs medication to function, I want him to have it.

So, IEP is next. I'll also give the report to his play therapist and his ped. I'm not sure what else is next, so if any of you are BTDT on this, I welcome your input.

Thank you all for your support and caring. This would be infinitely harder without my cyber friends.

And if your child has unusual behaviors, I'd just respectfully suggest that you get in touch with a parent liaison from your local Autism Society and consider getting your child checked out, because the American Psychiatry Association is about to change their standards for defining Asperger's and Autism. When they do, fewer people will qualify for services. To me, that would be awful, to need services, yet fall just below the qualifying threshold. I was told that kids who have already had a dx will probably be grandfathered.




Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg

Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc

ttc since 1998
Check your email. Had trouble posting here .... Last night.
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Joined: January 27th, 2003, 11:09 pm

March 10th, 2012, 2:16 pm #7

Ds's score for the Childhood Autism Rating Scale (2nd edition) is 30, which is mild to moderate autism. He will get services. We meet with the autism itinerant in 10 days to discuss specifics.

My main concerns at this time are that the services might not be adequate. I was reading the local parents' posts on FB and several do seem to feel their kids aren't getting enough.

Labeling: I don't want him to internalize this, which is something he does a lot. My parents labeled a lot, and even when labels are positive, as mine was, it can still be harmful, IMO.

Middle school: my biggest fear. I really hope that he can improve his coping and social skills.

Also, several ppl on the team today said they think he's under a lot of stress at school, trying to hold it together. I need to find out more about this. His df is a very conformist kind of guy. I can be pretty judgmental, too, I guess. So we both need to find ways, change our attitudes and behavior, to help ds feel more comfortable and accepted.

I guess I feel kind of numb today. I was worried that they would deny services, and here we'd be with this child who is teased and excluded and doesn't fit in, and no resources to help him. I'm relieved that we don't have to fight the district for this.

I also think ds has ADHD-I, the inattentive type of ADHD. (I'm sure I had and still have it, too.) I need to try some caffeine with him on a weekend to see how he responds, but so far, I can't spike a drink for him that he likes and I accept. I don't want to start giving him soda, so I'm trying to make a tea punch that my dgm used to make. It was lemonade and tea, and the first one I made, he rejected. (At least tea is good for you, so I'd feel ok about him getting that.)

DH is skeptical about meds for ADHD. We don't even have a dx yet, but I feel sure that a consultation plus the report we received will convince most drs that he has ADHD. DH is worried about the rebound, but I thought that was mostly from Ritalin, which is short-acting. I don't want ds's growth stunted, but of course, if he needs medication to function, I want him to have it.

So, IEP is next. I'll also give the report to his play therapist and his ped. I'm not sure what else is next, so if any of you are BTDT on this, I welcome your input.

Thank you all for your support and caring. This would be infinitely harder without my cyber friends.

And if your child has unusual behaviors, I'd just respectfully suggest that you get in touch with a parent liaison from your local Autism Society and consider getting your child checked out, because the American Psychiatry Association is about to change their standards for defining Asperger's and Autism. When they do, fewer people will qualify for services. To me, that would be awful, to need services, yet fall just below the qualifying threshold. I was told that kids who have already had a dx will probably be grandfathered.




Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg

Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc

ttc since 1998
I just wanted you to know I'm thinking about you. Yes, it is good news that he will qualify for services, and you were smart to pursue this (I think I might have been one of the people discouraged the need to diagnose. I'm sorry about that). I know you will navigate these waters.

xoxox
MM
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Joined: June 20th, 2006, 2:07 am

March 10th, 2012, 2:56 pm #8

Ds's score for the Childhood Autism Rating Scale (2nd edition) is 30, which is mild to moderate autism. He will get services. We meet with the autism itinerant in 10 days to discuss specifics.

My main concerns at this time are that the services might not be adequate. I was reading the local parents' posts on FB and several do seem to feel their kids aren't getting enough.

Labeling: I don't want him to internalize this, which is something he does a lot. My parents labeled a lot, and even when labels are positive, as mine was, it can still be harmful, IMO.

Middle school: my biggest fear. I really hope that he can improve his coping and social skills.

Also, several ppl on the team today said they think he's under a lot of stress at school, trying to hold it together. I need to find out more about this. His df is a very conformist kind of guy. I can be pretty judgmental, too, I guess. So we both need to find ways, change our attitudes and behavior, to help ds feel more comfortable and accepted.

I guess I feel kind of numb today. I was worried that they would deny services, and here we'd be with this child who is teased and excluded and doesn't fit in, and no resources to help him. I'm relieved that we don't have to fight the district for this.

I also think ds has ADHD-I, the inattentive type of ADHD. (I'm sure I had and still have it, too.) I need to try some caffeine with him on a weekend to see how he responds, but so far, I can't spike a drink for him that he likes and I accept. I don't want to start giving him soda, so I'm trying to make a tea punch that my dgm used to make. It was lemonade and tea, and the first one I made, he rejected. (At least tea is good for you, so I'd feel ok about him getting that.)

DH is skeptical about meds for ADHD. We don't even have a dx yet, but I feel sure that a consultation plus the report we received will convince most drs that he has ADHD. DH is worried about the rebound, but I thought that was mostly from Ritalin, which is short-acting. I don't want ds's growth stunted, but of course, if he needs medication to function, I want him to have it.

So, IEP is next. I'll also give the report to his play therapist and his ped. I'm not sure what else is next, so if any of you are BTDT on this, I welcome your input.

Thank you all for your support and caring. This would be infinitely harder without my cyber friends.

And if your child has unusual behaviors, I'd just respectfully suggest that you get in touch with a parent liaison from your local Autism Society and consider getting your child checked out, because the American Psychiatry Association is about to change their standards for defining Asperger's and Autism. When they do, fewer people will qualify for services. To me, that would be awful, to need services, yet fall just below the qualifying threshold. I was told that kids who have already had a dx will probably be grandfathered.




Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg

Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc

ttc since 1998
but wanted you to know that I am thinking of you and how, although mixed feelings, it must be satisfying to have things recognized and in today's world where autism is studied and coping tools are developed, changes/coping can happen.

sending you love and strength and huge hugs
julie
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Joined: March 12th, 2008, 1:22 pm

March 10th, 2012, 3:08 pm #9

Ds's score for the Childhood Autism Rating Scale (2nd edition) is 30, which is mild to moderate autism. He will get services. We meet with the autism itinerant in 10 days to discuss specifics.

My main concerns at this time are that the services might not be adequate. I was reading the local parents' posts on FB and several do seem to feel their kids aren't getting enough.

Labeling: I don't want him to internalize this, which is something he does a lot. My parents labeled a lot, and even when labels are positive, as mine was, it can still be harmful, IMO.

Middle school: my biggest fear. I really hope that he can improve his coping and social skills.

Also, several ppl on the team today said they think he's under a lot of stress at school, trying to hold it together. I need to find out more about this. His df is a very conformist kind of guy. I can be pretty judgmental, too, I guess. So we both need to find ways, change our attitudes and behavior, to help ds feel more comfortable and accepted.

I guess I feel kind of numb today. I was worried that they would deny services, and here we'd be with this child who is teased and excluded and doesn't fit in, and no resources to help him. I'm relieved that we don't have to fight the district for this.

I also think ds has ADHD-I, the inattentive type of ADHD. (I'm sure I had and still have it, too.) I need to try some caffeine with him on a weekend to see how he responds, but so far, I can't spike a drink for him that he likes and I accept. I don't want to start giving him soda, so I'm trying to make a tea punch that my dgm used to make. It was lemonade and tea, and the first one I made, he rejected. (At least tea is good for you, so I'd feel ok about him getting that.)

DH is skeptical about meds for ADHD. We don't even have a dx yet, but I feel sure that a consultation plus the report we received will convince most drs that he has ADHD. DH is worried about the rebound, but I thought that was mostly from Ritalin, which is short-acting. I don't want ds's growth stunted, but of course, if he needs medication to function, I want him to have it.

So, IEP is next. I'll also give the report to his play therapist and his ped. I'm not sure what else is next, so if any of you are BTDT on this, I welcome your input.

Thank you all for your support and caring. This would be infinitely harder without my cyber friends.

And if your child has unusual behaviors, I'd just respectfully suggest that you get in touch with a parent liaison from your local Autism Society and consider getting your child checked out, because the American Psychiatry Association is about to change their standards for defining Asperger's and Autism. When they do, fewer people will qualify for services. To me, that would be awful, to need services, yet fall just below the qualifying threshold. I was told that kids who have already had a dx will probably be grandfathered.




Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg

Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc

ttc since 1998
I guess this might feel like a mixed blessing...on one hand, I am guessing you had hoped DS wouldn't meet any criteria, but on the other, it must be a relief to know there are explanations (and resources).

I know that DS has an amazing advocate in you, and could not be in better hands for any issue he might have. I wish I had some advice that could help you, but this is out of my realm. But what I do know is that you are an incredible mother, researcher, and person, and once you dive in, you will find your way.

Much, much love,
Kat.
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Joined: December 2nd, 2005, 3:49 pm

March 10th, 2012, 3:24 pm #10

Ds's score for the Childhood Autism Rating Scale (2nd edition) is 30, which is mild to moderate autism. He will get services. We meet with the autism itinerant in 10 days to discuss specifics.

My main concerns at this time are that the services might not be adequate. I was reading the local parents' posts on FB and several do seem to feel their kids aren't getting enough.

Labeling: I don't want him to internalize this, which is something he does a lot. My parents labeled a lot, and even when labels are positive, as mine was, it can still be harmful, IMO.

Middle school: my biggest fear. I really hope that he can improve his coping and social skills.

Also, several ppl on the team today said they think he's under a lot of stress at school, trying to hold it together. I need to find out more about this. His df is a very conformist kind of guy. I can be pretty judgmental, too, I guess. So we both need to find ways, change our attitudes and behavior, to help ds feel more comfortable and accepted.

I guess I feel kind of numb today. I was worried that they would deny services, and here we'd be with this child who is teased and excluded and doesn't fit in, and no resources to help him. I'm relieved that we don't have to fight the district for this.

I also think ds has ADHD-I, the inattentive type of ADHD. (I'm sure I had and still have it, too.) I need to try some caffeine with him on a weekend to see how he responds, but so far, I can't spike a drink for him that he likes and I accept. I don't want to start giving him soda, so I'm trying to make a tea punch that my dgm used to make. It was lemonade and tea, and the first one I made, he rejected. (At least tea is good for you, so I'd feel ok about him getting that.)

DH is skeptical about meds for ADHD. We don't even have a dx yet, but I feel sure that a consultation plus the report we received will convince most drs that he has ADHD. DH is worried about the rebound, but I thought that was mostly from Ritalin, which is short-acting. I don't want ds's growth stunted, but of course, if he needs medication to function, I want him to have it.

So, IEP is next. I'll also give the report to his play therapist and his ped. I'm not sure what else is next, so if any of you are BTDT on this, I welcome your input.

Thank you all for your support and caring. This would be infinitely harder without my cyber friends.

And if your child has unusual behaviors, I'd just respectfully suggest that you get in touch with a parent liaison from your local Autism Society and consider getting your child checked out, because the American Psychiatry Association is about to change their standards for defining Asperger's and Autism. When they do, fewer people will qualify for services. To me, that would be awful, to need services, yet fall just below the qualifying threshold. I was told that kids who have already had a dx will probably be grandfathered.




Keiki's Makuahine (Keiki's Mom) 51, dh 52
Keiki: b. 2002 after 3 months bedrest
Natural conception following ZIFT/chem. pg

Olivia: b. 1999 d. 1999
28-week preemie, ptl cause unknown
Natural conception after 1 mc

ttc since 1998
I used to work exclusively with kids on the spectrum, now just the occasional kiddo. When I'm more awake and have a few minutes I'll re-read your post. Happy to help guide if I can. Every child is so different, as you know. He isn't now nor will he ever be his "diagnosis". Keep that in mind all the time as you move forward in terms of interventions. Not one size fits all!
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